Tags: awareness

04/04/12

  09:12:00 pm, by The Dreamer   , 376 words  
Categories: General, Travel, Healthcare

The Dreamer Claims A(nother?) Victim!

Link: http://remrunner.blogspot.com/2012/04/legs-on-fire-starting-my-training-for.html

What did Julie Flygare do to deserve this? I have no idea....

She ran the Boston Marathon in 2010 for Wake Up Narcolepsy....before I knew who she was and what Narcolepsy is. But, somebody had apparently told her to be on the look out for me at the Narcolepsy Network Conference in Crystal City, Arlington, VA.... but I didn't really learn much about her until I started following her blog and other online presence after that conference.

I learned a lot at the conference, and continued to learn after the conference...including lots of stuff about myself. I'm still a work in progress. (idiopathic hypersomnia, hypnagogia, hypnic jerk, sleep paralysis, automatic behavior, long sleep, etc.)

But, back to Julie.... because I was stalking her online.... about a week and half ago, this post from a few days earlier caught my eye:

In My Father's Footsteps: Trying to Find Registration for Mt Washington Road Race to run in my father's honor on Father's Day for charity

So, I did a little research of my own.... and then wrote this blog entry on my Tumblr site: REM Runner wants to run The Northeast Delta Dental Mount Washington Road Race 2012 -- In memory of her father and to raise money for Narcolepsy Awareness and Research.

I have my Tumblr site set to tweet my posts.

Using the APA Style

LawrenceChen. (2012, Mar 25). REM Runner wants to run The Northeast Delta Dental Mount Washington Road Race 2012 - In memory of her father... http://tmblr.co/ZmWZfwIYfD1N [Twitter post.] Retrieved from https://twitter.com/#!/LawrenceChen/status/183999798339313665

Which surprisingly lead to this tweet:

NortheastDelta. (2012, Mar 27). @LawrenceChen Tom Raffio the CEO of @NortheastDelta will be contacting soon. :) [Twitter post.] Retrieved from https://twitter.com/#!/NortheastDelta/status/184740188797419520

And

NortheastDelta. (2012, Mar 27). @LawrenceChen - for clarification - we are contacting Julie re the Mount Washington Road Race :) [Twitter post.] Retrieved from https://twitter.com/#!/NortheastDelta/status/184745755431550976

Concluding with

RemRunner. (2012, Mar 27). @NortheastDelta @LawrenceChen Thank you so much! REM Runnning up a mountain for my dad would be the honor of a lifetime! [Twitter post.] Retrieved from https://twitter.com/#!/RemRunner/status/184749224636850177

And, then it seemed like an eternity passed before I heard anything further...until I spotted her "Legs on Fire" post this morning.... Guess that means my next project is to get her published ;D

Full story »

03/01/12

  09:01:00 am, by The Dreamer   , 133 words  
Categories: General, Healthcare

March is Essential Tremor Awareness Month

Link: http://www.essentialtremor.org/National-Essential-Tremor-Awareness-Month

In late December 2010, the U.S. House of Representatives officially designated the month of March as National Essential Tremor Awareness Month. We invite you to get involved in helping us raise awareness in communities throughout the U.S. and abroad. With 10 million Americans alone affected by this life-altering condition and a general lack of public understanding, we need your help to spread the word.

What is Essential Tremor?
Also known as familial tremor, benign essential tremor or hereditary tremor, essential tremor (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs or trunk. It is often confused with Parkinson’s disease and dystonia. Because of stereotypes and a lack of awareness, many people with ET never seek medical care though most would benefit from treatment. Learn more about ET.

Full story »

Now instead of subjecting some poor random forum to a long rambling thought, I will try to consolidate those things into this blog where they can be more easily ignored profess to be collected thoughts from my mind.

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