Category: "Healthcare"

Pages: 2 4 5 6 7 8 9

07/02/12

  04:29:00 pm, by The Dreamer   , 440 words  
Categories: Stuff, Healthcare

How to check your PD

Since I seem to have this problem recently, that seems to lead to unexplained damage to eyeglasses....I thought I should acquire some cheap spares. Like using offers that appear via deals.woot.com or such sites now and then.

But, I had a bad experience before, because my PD wasn't right.

Now, I had noticed that there was a different PD measurement listed on my prescriptions that I've been getting from Eyecare Associates....which are probably right, but I thought I should see if there was some way to check for myself.

Searching the Internet, I found these instructions.

Self measure PD in front of a mirror: you need a mirror and a MM ruler.

  • Stand with you face about 20 cm (8 inches) from the mirror.
  • Close your right eye and look only with your left eye.
  • Place a ruler flat against the mirror and align it horizontally with the millimeter scale pointing up.
  • Look over the top of the ruler and align the zero mark in the center of your left pupil.
  • Open your right eye and close the left, but do not move your face or the ruler.
  • Read the millimeter measurement corresponding to the center of your right pupil.
  • Repeat the procedure several times to make sure you have a consistent measurement.

But this is rather difficult....well, there's another procedure:

  1. Hold the mm ruler on the bridge of your nose for stability. Pretend you can look through the mirror (X-ray vision) to see the horizon far away. This keeps your eyes from rotating in toward your nose.
  2. Point your face [nose] straight into a mirror.

    --- CLOSE your left eye to avoid parallax error. ---
  3. Align the ruler's zero to the center of your right pupil. The pupil is the black spot in the middle of the eye.
  4. Without moving the ruler, close your right eye and open your left eye.
  5. Read the millimeter line under your left pupil (careful -- backwards in mirror!).

    --- Keep you face "square" to the mirror to avoid parallax error. ---
  6. Repeat two or three times to confirm accuracy.

Using this second procedure, seems to confirm the PD on record for my prescription from Eyecare Associates.

65mm.

That's kind of a big difference than the number entered at Lenscrafters (62mm). Probably explains why buying glasses from anywhere other than Lenscrafters had always been a disaster. Which they don't use in the store, rather marking PD locations on the demo lenses and making the pair from that....within an hour.

Time to see if a few $9 pairs will really work....well, they'll end up much more than that, because I'll add in things like anti-scratch, anti-glare, high-index and progressive....and maybe I'll tint one.

04/04/12

  09:12:00 pm, by The Dreamer   , 376 words  
Categories: General, Travel, Healthcare

The Dreamer Claims A(nother?) Victim!

Link: http://remrunner.blogspot.com/2012/04/legs-on-fire-starting-my-training-for.html

What did Julie Flygare do to deserve this? I have no idea....

She ran the Boston Marathon in 2010 for Wake Up Narcolepsy....before I knew who she was and what Narcolepsy is. But, somebody had apparently told her to be on the look out for me at the Narcolepsy Network Conference in Crystal City, Arlington, VA.... but I didn't really learn much about her until I started following her blog and other online presence after that conference.

I learned a lot at the conference, and continued to learn after the conference...including lots of stuff about myself. I'm still a work in progress. (idiopathic hypersomnia, hypnagogia, hypnic jerk, sleep paralysis, automatic behavior, long sleep, etc.)

But, back to Julie.... because I was stalking her online.... about a week and half ago, this post from a few days earlier caught my eye:

In My Father's Footsteps: Trying to Find Registration for Mt Washington Road Race to run in my father's honor on Father's Day for charity

So, I did a little research of my own.... and then wrote this blog entry on my Tumblr site: REM Runner wants to run The Northeast Delta Dental Mount Washington Road Race 2012 -- In memory of her father and to raise money for Narcolepsy Awareness and Research.

I have my Tumblr site set to tweet my posts.

Using the APA Style

LawrenceChen. (2012, Mar 25). REM Runner wants to run The Northeast Delta Dental Mount Washington Road Race 2012 - In memory of her father... http://tmblr.co/ZmWZfwIYfD1N [Twitter post.] Retrieved from https://twitter.com/#!/LawrenceChen/status/183999798339313665

Which surprisingly lead to this tweet:

NortheastDelta. (2012, Mar 27). @LawrenceChen Tom Raffio the CEO of @NortheastDelta will be contacting soon. :) [Twitter post.] Retrieved from https://twitter.com/#!/NortheastDelta/status/184740188797419520

And

NortheastDelta. (2012, Mar 27). @LawrenceChen - for clarification - we are contacting Julie re the Mount Washington Road Race :) [Twitter post.] Retrieved from https://twitter.com/#!/NortheastDelta/status/184745755431550976

Concluding with

RemRunner. (2012, Mar 27). @NortheastDelta @LawrenceChen Thank you so much! REM Runnning up a mountain for my dad would be the honor of a lifetime! [Twitter post.] Retrieved from https://twitter.com/#!/RemRunner/status/184749224636850177

And, then it seemed like an eternity passed before I heard anything further...until I spotted her "Legs on Fire" post this morning.... Guess that means my next project is to get her published ;D

Full story »

03/17/12

  06:53:00 pm, by The Dreamer   , 337 words  
Categories: Hardware, Software, Computer, Healthcare, Windows, VirtualBox, Quicken/TurboTax

CPAP Data Recovered

As I may or may not have mentioned, Zen failed to boot after it got the latest set of Microsoft patches on February 15th. After various attempts to recover, it has been declared lost. I haven't gotten around to resurrecting it.

So, I've been making do with a Windows XP VirtualBox that I have my on Linux system (starting to look like when I do get around to resurrecting it, I'm going to try 12.04LTS Desktop and Windows 7 in VirtualBox....)

Previously, it was just Quicken and then TurboTax. But, I've been wondering about my CPAP data.

First was EncoreViewer. How do I recover that historical data. I knew where it kept the files, because I had copied them from TARDIS into Windows XP mode. The question now was how do I get the files out of Windows XP mode. In the end, the answer was WinImage...to merge the differencing-VHD that Windows XP Mode uses, into a single file and then convert it for VirtualBox use. Could've gone direct...except that I found first try with WinImage didn't work...so second time I converted to a fixed VMDK file, and then converted the fixed file into a dynamic sizing virtual disk for use on VirtualBox.

Though later I realized that I only want it as read-only....to get my data back....anyways.

That worked.

Next question was how do I recover my data in SmartLink.

I installed it into my Windows XP VirtualBox, and wondered where does C:\ProgramData exist in Windows XP space....but, while poking around, I remembered it has a backup/restore database option...and wondered if I had ever done a backup.

I lucked out. The last time I used the software was the only time I had ever used the backup function....and that's just perfect, I restored from that and then did my latest downloads from both my xPAPs.

:cool:

Just have to see if I remember to do another download before my next doctor appointment. I didn't print anything, because I hope that by then...I'll also have my new printer. :))

03/01/12

  09:01:00 am, by The Dreamer   , 133 words  
Categories: General, Healthcare

March is Essential Tremor Awareness Month

Link: http://www.essentialtremor.org/National-Essential-Tremor-Awareness-Month

In late December 2010, the U.S. House of Representatives officially designated the month of March as National Essential Tremor Awareness Month. We invite you to get involved in helping us raise awareness in communities throughout the U.S. and abroad. With 10 million Americans alone affected by this life-altering condition and a general lack of public understanding, we need your help to spread the word.

What is Essential Tremor?
Also known as familial tremor, benign essential tremor or hereditary tremor, essential tremor (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs or trunk. It is often confused with Parkinson’s disease and dystonia. Because of stereotypes and a lack of awareness, many people with ET never seek medical care though most would benefit from treatment. Learn more about ET.

Full story »

02/01/12

  06:59:00 pm, by The Dreamer   , 276 words  
Categories: General, Healthcare

Restless Leg Syndrome Awareness Week

Link: http://www.sleepassociation.org/index.php?p=rlsawarenessweek

According to the American Sleep Association, this week February 1-7 is Restless Leg Syndrome Awareness week. Or, Willis-Ekbom Disease...which is the corrected name of the condition.

OTOH, according to the RLS Foundation...the awareness week is September 16-22?

Anyways....I've probably had Willis-Ekbom for years....I remember the weird something crawling under my skin sensations back into childhood, and I recall being told that I was a kicker in bed. I used to tuck the sheets in extra tight all around me, in an effort to control things....these days I don't do that anymore, but I need to have the weight of my comforter on top of me to sleep.

I also had a peculiar problem where the area around my feet would wear out faster on my sheets than anywhere else. One year, I put off checking for a long time, and eventually wore through the heated mattress pad underneath. That was a cold winter, with no working mattress pad.

Was annoying, because it is one of the few mattress pads out there that doesn't have the cord connection on the top surface of the pad...where my constant moving feet are going to keep bumping into it all night.

Then last year, I saw a new doctor, and before I said anything, he asked if I was on anything for my RLS. Now I'm on Ropinirole (Requip). I'm using a heated mattress pad that has the cord connection point on the surface, but it doesn't bother me as much and I things seem better. Though sometimes things still do shift. Also, the dose is mainly to treat the condition at night, I still have the sensations in the day time....

01/23/12

  11:39:00 am, by The Dreamer   , 250 words  
Categories: General, Healthcare

Rare Disease Day 2012

Link: http://rarediseaseday.us/

Somehow slipped my mind that this year would be a leap year.

Guess that makes it appropriate that Rare Disease Day will be on February 29th this year.

About Rare Disease Day

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year and this year will be observed February 29, 2012. Learn more about the History of Rare Disease Day, Past Successes or the Goals and Plans for this year.

Anyone can be involved in Rare Disease Day and there are many suggested activities. The day has been established as a grassroots advocacy day and we encourage everyone to participate in some way.

This website focuses on Rare Disease Day activities in the U.S. To learn what’s happening around the world, go to the global Rare Disease Day website at rarediseaseday.org.

What is a Rare Disease?

In the U.S., a rare disease is one that affects fewer than 200,000 people. This definition comes from the Orphan Drug Act of 1983 and is slightly different from the definition used in Europe. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease.

Besides dealing with their specific medical problems, people with rare diseases struggle to get a proper diagnosis, find information, and get treatment. The rarity of their conditions makes medical research more difficult. For 2012, our focus is solidarity.

12/25/11

  04:39:17 pm, by The Dreamer   , 386 words  
Categories: General, Home, Safety & Security, Healthcare

Merry Christmas ... Home Sweet Home.

Merry Christmas....

So, other than sleeping in past 11am...and a frantic search for work phone (turned out it was exactly where it was supposed to be, I had just put my Kindle on top of it last night.)

I remembered that there was one very important gift to give on Christmas Day. New batteries for my smoke detectors.

Even though one of them ran down early back in November...I replaced batteries in all 4 of them. With new batteries I had picked up a couple of weeks ago.

But, before I got to...I ended up hitting a few other chores that I needed to do, like laundry, dishes, and cleaning my CPAP stuff. (not in this order...)

Think my Intellipap AutoAdjust just might still have its original filters in place....so I swapped it for the pair of foam and white filters that came with it, threw out the white (which didn't look that bad, considering neglected white filters in my old CPAP would look pretty dark....perhaps time of year plays a part). Knew I had bought extras, looked around a bit...but couldn't find them, though I found a package with one remaining white filter for my old machine (as well as a packages with 24 or 30 new ones.) I had dug out the old machine on Friday to do a download, but had already put it back....so I had to dig it out again to replace its filters. I some how manage to keep losing foam filters now and then after I wash them. Probably because I leave them near room fan to dry, and when they become dry they take flight. Well, I have a few new ones...so that went into the old machine and I put it back in its travel bag.

Someday I should replace the hose in the travel bag....

I then took mask cushion and went to clean these items.

Not sure if I'll get to a laundry load today or tomorrow where I run headgear through. There was something else I was going to do this break laundry wise...not sure if I'll get to it now. That's wash my winter jacket. Perhaps I'll try to do that after the whites are done. And, leave colored and hand wash loads to tomorrow. Not sure if I'll do that other special load this weekend....

12/01/11

  03:09:00 pm, by The Dreamer   , 224 words  
Categories: Healthcare

It was a VNG that I had.

I thought I heard ENG… though I was still close.

ENG is Electronystagmography, so I had visions of being wired up similar to my previous PSG/MSLT experiences… but what I had was a VNG, Videonystagmography…where I just wear goggles that watch how my eyes respond to various visual stimulus, positional situations, and blowing warm and then cool air into my ear.

The blowing of air…makes for some pretty horrible spinning….nauseous, and a horrible headache.

Wonder what kind of find I want though…. in 2002 I had heard terms like BPPV and Meniere’s…and that the medication sucked more than the dizziness. Of course, Meniere’s is yet another idiopathic disease…and autoimmune. Though ENT is thinking that my dizziness/vertigo, etc. wasn’t due to an inner ear problem, but rather some other neurological condition….so that he might be referring me back to the Neurologist that had referred me to him.

So, do we just confirm that its still the same thing I had in 2002, and I just suffer…because primary doesn’t want to give me anything that has a potential side effect of causing drowsiness… Like that has anything to do with my hypersomnia. Or even when its medication prescribed by my sleep doctor. Or, that …. not sure…that this overlooked symptom combined with all my other issues, finally leads to the correct diagnosis.

Hopefully its at least something definite.

11/23/11

  06:05:00 pm, by The Dreamer   , 633 words  
Categories: Hardware, Computer, Travel, Healthcare, Printers

First 'download' from new IntelliPAP

So, I'm about to go off for a trip...and therefore take a little break from my IntelliPAP AutoCPAP machine.... )-o

U-(

&#59;D ....and go back to use my old M-Series Pro CPAP machine.

Anyhoo....a while back I had picked up a 'new' laptop computer

Well, the purpose of that computer was primarily intended to easily record smart codes from the readout of the IntelliPAP AutoCPAP, enter them on the intellipap website and generate my latestly report. But, the laptop is currently spending most of its time competing with my other laptop in the living room. But, I did recently pick up a Thermaltake Toughpower Ultra Slim 95 Watts Universal Laptop Power Adapter High-Efficiency USB Charging Port using Amazon Prime....to be part of a rush shipment of goods that I wanted before going to Chicago TARDIS. Except that I'm sticking with my old laptop for travel, and the reason I wanted a new/different laptop power adapter...was that the Compaq 6910p's adapter uses a 3-wire AC cord...and there isn't one easily available near my bed. So, buying a new power adapter that uses a 2-wire cord seemed the way to go. Though there are cheaper, slower shipping ones available.

And, wouldn't you know it...I was on that sight buying a pre-Black Friday/Cyber Monday special and forgot to get the power adapter I had looked at earlier as part of the order. And, now I probably can't...because the adapter alone isn't enough to get free shipping. But, what I did get is getting free shipping....and it would've be nicer to have it with it. Maybe later...

Though I remember why the logic broke....the other power adapter I was looking at, would've been more suited for permanent use in my bedroom (green features) and the Thermaltake more useful when traveling (can never have enough USB charge ports in a hotel room...) So, not sure what I'm doing now....should really finish packing. Took today off to do that, and I haven't started yet. :oops:

Pages: 1· 2

11/10/11

  07:58:05 pm, by The Dreamer   , 3536 words  
Categories: Travel, Healthcare

I went to a Narcolepsy Network Conference in Las Vegas #NN2011

I was in Las Vegas, NV for the 26th Annual Patient Narcolepsy Network Conference from October 13-16, 2011 at the Stratosphere.

This is my second Narcolepsy Network conference. My first was the 25th Annual one in Arlington, VA (actually the Hyatt in Crystal City, VA)....

What led me to my first NN Conference was kind of strange. In early 2010, I first heard the N word raised in relation to my continuing EDS problem after successful/compliant management of my Sleep Apnea using CPAP (AHI was less than 1.0....closer to 0.0. In fact it was 0.0 in a PSG I had in December 2010, so sleep doc lowered my pressure so that its around 1.5 now.)

I honestly didn't really know a whole lot about Narcolepsy then, so I started researching it online. Since, I was a regular on the TalkAboutSleep message boards, and attended the Sleep Apnea chats regularly too....I started showing up to the Narcolepsy/Idiopathic Hypersomnia/Fibro chats as well.

From the chats, I feel like I've gotten to know Tracy and some of the other moderators. And, Tracy suggested a few times in chats that I check out Narcolepsy Network and its upcoming conference. With the implication that we would finally get to meet face to face if I went to the 25th one.

So, that's why I joined Narcolepsy Network and then went to the 25th Conference in 2010. Somewhere after I was committed to going, namely I had purchased my non-refundable coach airplane ticket. Tracy started saying she might not show up, and eventually it became a definite. But, she would be on for regular Thursday night N/IH/F chat....so I could do that the night before the conference from the hotel. During the chat I met Ann Austin....

At this point, I wasn't sure there was going to be any future NN Conferences for me. Since they seem to usually be second weekend in October...and doesn't line up too well with other conference/convention activities that I want to do this time of year (namely the Ohio Linux Fest...which is usually in mid-ish September, though the year I last went it was on the Columbus Day weekend....and some day I want to go again. And, Chicago TARDIS....Thanksgiving Day weekend. I actually wasn't planning to go this year [2011], but decided that I would when Alex Kingston was going to be there....she's not now, but Fifth Doctor Fest makes it still seem ok....though its missing one companion that I associate with 5, though Tony Lee kept saying at last year's Chicago TARDIS "Adric is dead"... :`( )

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Now instead of subjecting some poor random forum to a long rambling thought, I will try to consolidate those things into this blog where they can be more easily ignored profess to be collected thoughts from my mind.

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