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November 3rd, 2012 #Nchat

11/03/12

  05:46:00 pm, by The Dreamer   , 6273 words  
Categories: mSpew

November 3rd, 2012 #Nchat

  • catthoma Q2. What was the first indication that it might be #narcolepsy? Did you know about narcolepsy when it was mentioned? #nchat -4:17 PM Nov 3rd, 2012
  • TheRealMikeHunt @convergecollide same here but they could never find the problem #Nchat -4:17 PM Nov 3rd, 2012
  • convergecollide A1 contd: I have memories of vivid, complex dreams during childhood, too. #Nchat -4:17 PM Nov 3rd, 2012
  • TheRealMikeHunt @lauramariee19 same here #Nchat -4:18 PM Nov 3rd, 2012
  • TheRealMikeHunt @catthoma that turned out to be a bunch of crap, am I right? #Nchat -4:18 PM Nov 3rd, 2012
  • stridesagainstN A1: As an adult, I was able to take a sick day or work from home when I was sleepy. Never dawned on me that it was a real issue. #Nchat -4:18 PM Nov 3rd, 2012
  • catthoma A2. First indication only came January 2012. It wasn't mentioned as #narcolepsy- just that I needed to 'have my sleep issues tested' #nchat -4:18 PM Nov 3rd, 2012
  • LawrenceChen It wasn't until a health screening showed I was stage 1 hypertension, that doc finally decided to check...in 2008. #nchat -4:18 PM Nov 3rd, 2012
  • TheRealMikeHunt @LawrenceChen cars always put me to sleep #Nchat -4:19 PM Nov 3rd, 2012
  • convergecollide A2: I remember feeling so frustrated with how sleepy I was, googled "narcolepsy" almost half-jokingly... #Nchat -4:19 PM Nov 3rd, 2012
  • lauramariee19 A2: Family decided that my collapsing completely when I laughed wasn't normal ;-) #nchat -4:19 PM Nov 3rd, 2012
  • LawrenceChen Yeah...I really liked those really vivid dreams....most of the time. #nchat -4:19 PM Nov 3rd, 2012
  • stridesagainstN RT @catthoma: Q2. What was the first indication that it might be #narcolepsy? Did you know about narcolepsy when it was mentioned? #nchat -4:19 PM Nov 3rd, 2012
  • catthoma @TheRealMikeHunt Exactly. In review of my sleep with a sleep doc, I've probably had it my whole life. Awesome. #nchat -4:19 PM Nov 3rd, 2012
  • convergecollide A2: came across the Epworth Sleepiness Scale and was shocked at how high my score was! That's when I made 1st appt w sleep specialist #Nchat -4:20 PM Nov 3rd, 2012
  • stridesagainstN A2: I'd heard of #narcolepsy but was misinformed like most. When sleep doc mentioned it, I thought he was wrong until I Googled it. #Nchat -4:20 PM Nov 3rd, 2012
  • TheRealMikeHunt A2. #narcolepsy was the last thing on my mind. Everybody just assumed it was sleep apnea because I was over weight #Nchat -4:21 PM Nov 3rd, 2012
  • catthoma @TheRealMikeHunt @LawrenceChen Same here! Road trips always mean nap time! Even if it's only 15 minutes! #nchat -4:21 PM Nov 3rd, 2012
  • stridesagainstN A2: I'd been taking sleep aids for #insomnia for a year, only to find they weren't working one bit. #Nchat -4:21 PM Nov 3rd, 2012
  • convergecollide @stridesagainstN when I read about what narcolepsy actually was I was shocked. What I thought it was was SO wrong. #nchat -4:21 PM Nov 3rd, 2012
  • LawrenceChen A2: 2010, when I was still having EDS with CPAP...PCP mentioned #narcolepsy as a possibility. #nchat -4:21 PM Nov 3rd, 2012
  • catthoma A2. I had never really heard about it- except that we have always joked my grandpa has it. I saw it as a joke #nchat -4:22 PM Nov 3rd, 2012
  • LawrenceChen I only noticed recently, that it mentions that possibility a couple times in my first sleep study. #nchat -4:22 PM Nov 3rd, 2012
  • TheRealMikeHunt @stridesagainstN When I found out I had #narcolepsy I thought it would be just like the movies. I WAS WRONG! #Nchat -4:22 PM Nov 3rd, 2012
  • stridesagainstN @convergecollide Me, too, and then I was like "well THAT explains a lot!" #Nchat -4:23 PM Nov 3rd, 2012
  • mavericksmeow #nchat anyone misdiagnosed as having nocturnal epilepsy? -4:23 PM Nov 3rd, 2012
  • TheRealMikeHunt @convergecollide What is the Epworth Sleepiness Scale? #Nchat -4:23 PM Nov 3rd, 2012
  • catthoma A2. It was never mentioned by any doc until after my first sleep study. They tested me for sleep apnea first. I laughed at that one! #nchat -4:23 PM Nov 3rd, 2012
  • stridesagainstN @TheRealMikeHunt It's way worse than its portrayed in the movies. #Nchat -4:23 PM Nov 3rd, 2012
  • convergecollide @TheRealMikeHunt it just always came back to "you just require more sleep than most people" for me. #nchat -4:23 PM Nov 3rd, 2012
  • LawrenceChen Later late 2010, some friends said they saw cataplexy in me. Like when I was being pressured to not be alone... #nchat -4:24 PM Nov 3rd, 2012
  • TheRealMikeHunt @mavericksmeow yes but after I got a second opinion from another doctor I cleared that right up. #Nchat -4:24 PM Nov 3rd, 2012
  • catthoma @mavericksmeow My new sleep doc is now throwing that diagnosis at me. He said it may be that instead of #narcolepsy. Joy! #nchat -4:24 PM Nov 3rd, 2012
  • MiaRaven @catthoma Oh goodness, I forgot #nchat (as usual). -4:24 PM Nov 3rd, 2012
  • stridesagainstN @catthoma My doc said, "well it COULD be #apnea because of your small jaw and high pallet but I have a hunch it isn't that at all." #Nchat -4:25 PM Nov 3rd, 2012
  • LawrenceChen My first sleep doc tried to say I was having seizures...even though I had an EEG the year before which was negative. #nchat -4:25 PM Nov 3rd, 2012
  • catthoma @MiaRaven Haha! You're not too late! Only on question 2 of 5- jump in! #nchat -4:26 PM Nov 3rd, 2012
  • TheRealMikeHunt @MiaRaven @catthoma catch up lady! #Nchat -4:26 PM Nov 3rd, 2012
  • mavericksmeow @TheRealMikeHunt #Nchat took me 5 years.. And medicated for it -4:26 PM Nov 3rd, 2012
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