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January 5th, 2013 #NChat

01/06/13

  08:28:00 am, by The Dreamer   , 9134 words  
Categories: mSpew

January 5th, 2013 #NChat

  • stridesagainstN Q5. Are you interested in holding awareness events in your area? If you had someone to help, would this increase your willingness? #Nchat -4:51 PM Jan 5th, 2013
  • wehaveourhopes RT @convergecollide: @stridesagainstN It's really impressive how almost everyone knows nothing, or is misinformed. #nchat -4:51 PM Jan 5th, 2013
  • TheRealMikeHunt @stridesagainstN is gonna have a hell of a time giving a recap on her blog after this after this #Nchat. This is the biggest one yet. -4:51 PM Jan 5th, 2013
  • convergecollide @MiaRaven I just feel like when I say "well, I don't have that part of it" ppl give me the side-eye like I'm just making it up. #nchat -4:51 PM Jan 5th, 2013
  • mavericksmeow A5: I would but not many are in Toronto. I've looked into it but there's not much that exists yet #Nchat -4:52 PM Jan 5th, 2013
  • MaireadLawless @stridesagainstN @stinacristina @jenniewakefield @mitdoc My son is on Xyrem & Concerta. Big improvement since he started both #nchat -4:52 PM Jan 5th, 2013
  • TheRealMikeHunt RT @convergecollide: @stridesagainstN It's really impressive how almost everyone knows nothing, or is misinformed. #nchat -4:52 PM Jan 5th, 2013
  • stridesagainstN @TheRealMikeHunt Yessiree. And it's got me so fired up about 2013. #Nchat -4:52 PM Jan 5th, 2013
  • meggbphillips A5: Besides the concert my bf has organized, I want to do something else. Something more. But I don't know what or how. #nchat -4:52 PM Jan 5th, 2013
  • LawrenceChen Though I guess now that I have Dx, I don't need to get them to go over my PSG/MSLT with me anymore. #nchat -4:52 PM Jan 5th, 2013
  • mitdoc A5. My fund raiser on March 9 is to raise awareness as well. Would love to work with anyone in the Roanoke, VA area. #Nchat -4:53 PM Jan 5th, 2013
  • TheRealMikeHunt @mavericksmeow Well at least you have this #Nchat -4:53 PM Jan 5th, 2013
  • convergecollide A5: I am in theory, but I don't really have time to organize something right now. But maybe in the future! #nchat -4:53 PM Jan 5th, 2013
  • TheRealMikeHunt @stridesagainstN FIST PUMP #Nchat -4:53 PM Jan 5th, 2013
  • LawrenceChen A5: yes, if I had the right someones with me...I'm sure I'd be out there doing all sorts of things... #nchat -4:53 PM Jan 5th, 2013
  • stridesagainstN If you wish, send me a DM with your email address and location. I will put together a spreadsheet and find others near you! #Nchat -4:53 PM Jan 5th, 2013
  • mavericksmeow They think you make it up until you drive tired then they blame you for not staying home. Lol. #Nchat -4:53 PM Jan 5th, 2013
  • jenniewakefield @stinacristina #Nchat maybe Modafinil will help with ur EDS, I'm seeing my GP on the 11th, am gona ask about xyrem for my REM sleep -4:53 PM Jan 5th, 2013
  • MaireadLawless @belstar06 @mavericksmeow @sarah_hosey It can run in families! Often not diagnosed in older generations though. #nchat -4:54 PM Jan 5th, 2013
  • stridesagainstN @LawrenceChen You know, we're not THAT far apart. :) I wonder if we could arrange something midway? #Nchat -4:54 PM Jan 5th, 2013
  • TheRealMikeHunt A5. 2013 will be all about kicking ass and telling people about #narcolepsy #Nchat -4:54 PM Jan 5th, 2013
  • Sarah_hosey @stridesagainstN A5: I dont know how many people are in Arkansas, or close to here. But if we could find a location, Id love to help! #nchat -4:54 PM Jan 5th, 2013
  • MaireadLawless @convergecollide #nchat her name is Mali Einen. -4:55 PM Jan 5th, 2013
  • TheRealMikeHunt @mavericksmeow God I hate hearing that. #Nchat -4:55 PM Jan 5th, 2013
  • LawrenceChen I've been active in other causes in the past, but never the leader...just the technical guy making the cogs move. #nchat -4:55 PM Jan 5th, 2013
  • wehaveourhopes #nchat Me thinks it's getting a little out of hand here. Could you please mark the questions so everyone can see them better? Thanks! :) -4:55 PM Jan 5th, 2013
  • TheRealMikeHunt @stridesagainstN Great idea I was just about to say that #Nchat -4:56 PM Jan 5th, 2013
  • mavericksmeow “@mumfrommold: @NarcolepsyNews @mavericksmeow Any other #narcolepsy sufferers in the UK? North Wales not exactly a hotbed of N&C” #nchat -4:56 PM Jan 5th, 2013
  • convergecollide @MaireadLawless thanks! I will definitely look into that. #nchat -4:56 PM Jan 5th, 2013
  • jenniewakefield @belstar06 #nchat I very rarely collapse in a heap, but my legs buckle and my head goes back, and my body freezes, only last a few seconds -4:56 PM Jan 5th, 2013
  • lauramariee19 A5. Not really... I'd be more interested in helping with a pwn group meetup than an awareness event. #nchat -4:56 PM Jan 5th, 2013
  • LawrenceChen I'm kind of limited on what how far midway might be....its hard enough getting to just the other side of Tuttle Creek Blvd.... #nchat -4:57 PM Jan 5th, 2013
  • MaireadLawless #nchat if you guys are on Facebook there are plenty groups where people share info etc. If you find me and befriend me I can try and add you -4:57 PM Jan 5th, 2013
  • stinacristina @jenniewakefield I'm sorry, but what's EDS? I am still new to the narcolepsy world. #nchat -4:57 PM Jan 5th, 2013
  • belstar06 @mavericksmeow @mumfrommold @NarcolepsyNews am from uk although dont have C #nchat -4:57 PM Jan 5th, 2013
  • TheRealMikeHunt @wehaveourhopes What do you need help with. #Nchat -4:57 PM Jan 5th, 2013
  • stinacristina @jenniewakefield Wait, hello, excessive daytime sleepiness! Haha. #Nchat -4:57 PM Jan 5th, 2013
  • LawrenceChen Even though maps claim there's more beyond there of interest...like the other sleep lab in town. #nchat -4:57 PM Jan 5th, 2013
  • TheRealMikeHunt RT @lauramariee19: A5. Not really... I'd be more interested in helping with a pwn group meetup than an awareness event. #nchat -4:57 PM Jan 5th, 2013
  • mavericksmeow Tweet and follow the thread #nchat tons of us are together chatting about it now! &#59;) -4:57 PM Jan 5th, 2013
  • jenniewakefield @stinacristina #nchat EDS Excessive Daytime Sleep -4:58 PM Jan 5th, 2013
  • stinacristina @MaireadLawless I've never heard of Concerta. I'm glad he's found something that works for him! #nchat -4:58 PM Jan 5th, 2013
  • MiaRaven #nchat A5 - I'd love to raise awareness in my area, but seems there are very few ppl w/N or C. It'd definitely be better to get some help. -4:58 PM Jan 5th, 2013
  • stridesagainstN That's all the questions we have for this month. Thank you for another great chat. I'll get a recap up on the blog. #Nchat -4:58 PM Jan 5th, 2013
  • LawrenceChen And, I have yet to visit Lawrence, KS since I've been back to KS. Perhaps someday I'll visit the city of my birth.... #nchat -4:59 PM Jan 5th, 2013
  • jenniewakefield RT @mavericksmeow: Tweet and follow the thread #nchat tons of us are together chatting about it now! &#59;) -4:59 PM Jan 5th, 2013
  • TheRealMikeHunt Need a score update #Nchat -4:59 PM Jan 5th, 2013
  • MaireadLawless @stinacristina @jenniewakefield Excessive Daytime Sleepiness #nchat -4:59 PM Jan 5th, 2013
  • lauramariee19 Time sure does fly! #nchat -5:00 PM Jan 5th, 2013
  • LawrenceChen Though I do have my first doctor appointment in Topeka on Monday....my $boss is driving me to it. #nchat -5:00 PM Jan 5th, 2013
  • Sarah_hosey @MaireadLawless I will look for you! Thanks! #nchat -5:00 PM Jan 5th, 2013
  • TheRealMikeHunt I want to thank you for coming again today. And I want to welcome all the new faces. Makes sure to follow all your new #Nchat friends. -5:00 PM Jan 5th, 2013
  • stridesagainstN @lauramariee19 Yes it does! This chat was especially crazy! #Nchat -5:00 PM Jan 5th, 2013
  • MaireadLawless @stinacristina #nchat It's basically extended release Ritalin. Acts as a stimulant. -5:00 PM Jan 5th, 2013
  • mavericksmeow @mumfrommold Tweet and follow the thread #nchat tons of us are together chatting about it now! &#59;) -5:01 PM Jan 5th, 2013
  • TheRealMikeHunt This was by far the most interactive #Nchat we have ever had. It did get a little crazy there but there is always room for improvement. -5:01 PM Jan 5th, 2013
  • stridesagainstN If there is a question or topic you'd like to address, please DM me, @TheRealMikeHunt or @catthoma. #Nchat -5:01 PM Jan 5th, 2013
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