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March 2nd, 2013 #NChat

03/02/13

  03:03:00 pm, by The Dreamer   , 6880 words  
Categories: mSpew

March 2nd, 2013 #NChat

  • TheRealMikeHunt Q3. For those who support someone w/ #narcolepsy- what struggles do you face trying to be supportive? #NChat -1:30 PM Mar 2nd, 2013
  • LawrenceChen But, the university paper reorged their site and it seems to be gone now. #nchat -1:30 PM Mar 2nd, 2013
  • catthoma @RemRunner @stridesagainstN @LawrenceChen How amazing are you? I am anxious to hear! #nchat -1:30 PM Mar 2nd, 2013
  • stridesagainstN @RemRunner is that presentation available somewhere for #PWN to check out? It sounds like it could be beneficial for them as well! #Nchat -1:30 PM Mar 2nd, 2013
  • mama_beers @TheRealMikeHunt @ItsJustMeMia #nchat my son did pa! just at the beginning of our dx. they didn't seem to care. he was 15 then -1:31 PM Mar 2nd, 2013
  • ItsJustMeMia @therealmikehunt Alabama is like Arizona's bastard cousin, I've had the same thing happen to me. It's why I started my own biz. #nchat -1:31 PM Mar 2nd, 2013
  • TheRealMikeHunt @convergecollide My girlfriend is so good about waking me up when I start to doze off and putting me to bed. #NChat -1:32 PM Mar 2nd, 2013
  • stridesagainstN RT @TheRealMikeHunt: Q3. For those who support someone w/ #narcolepsy- what struggles do you face trying to be supportive? #Nchat -1:32 PM Mar 2nd, 2013
  • catthoma A3. Hubby has told me that I'm frustrating because I don't open up when I'm having a bad day. #nchat -1:32 PM Mar 2nd, 2013
  • stridesagainstN A3. I will answer for my husband. His biggest struggle is that I don't often listen to him when he suggests I take it easy. #Nchat -1:33 PM Mar 2nd, 2013
  • wehaveourhopes #Nchat Hi all, I'm Nadine, 31, and I was diagnosed two years ago. I'm a #PWN and mild form of cataplexy. -1:33 PM Mar 2nd, 2013
  • LawrenceChen A3 I don't think I have clue how to be supportive for someone with #narcolepsy, though I do dream about the possibility.... #nchat -1:33 PM Mar 2nd, 2013
  • kathylovesmusic #nchat A1: I always point to two major articles for my family to read. Like what I've read in other answers, still a lack of understanding. -1:33 PM Mar 2nd, 2013
  • THEAdnAmA Q3. My husband says his only struggle is that I fall asleep after sex. Yep. That is what he said. #NCHAT -1:33 PM Mar 2nd, 2013
  • convergecollide A3: my wife used to find it frustrating when I would start to doze off /need to go to bed early but I think she's gotten used to it. #nchat -1:33 PM Mar 2nd, 2013
  • TheRealMikeHunt @mama_beers @ItsJustMeMia Good for him. #NChat -1:33 PM Mar 2nd, 2013
  • stridesagainstN A3. My husband also needs me to tell him exactly what I need help with instead of hoping he'll just read my mind lol. #Nchat -1:34 PM Mar 2nd, 2013
  • catthoma @stridesagainstN I second that times a million. #nchat -1:34 PM Mar 2nd, 2013
  • TheRealMikeHunt @wehaveourhopes Hi Nadine! #NChat -1:34 PM Mar 2nd, 2013
  • ItsJustMeMia #nchat I carry around the fact sheet printed out from Stanford in my purse bc most docs (much less normal ppl) don't know the FACTS abt NwC -1:34 PM Mar 2nd, 2013
  • mama_beers #nchat q3- not knowing if I'm helping or nagging! I have to tell him things numerous times to make sure he gets it sometimes -1:34 PM Mar 2nd, 2013
  • stridesagainstN @kathylovesmusic would you mind sharing the articles here in case someone else may be able to use them? Thank you!! #Nchat -1:34 PM Mar 2nd, 2013
  • catthoma @wehaveourhopes Hey lady! Glad you could make it! :) #nchat -1:34 PM Mar 2nd, 2013
  • jh_dance @ItsJustMeMia #nchat That doesn't make sense to me. If I can be a doctor with MS and narcolepsy...?? -1:35 PM Mar 2nd, 2013
  • NatalieBlackwel Q3: Its hard as a carer to fully understand how it feels with N. My son is 8, and can't always explain how he feels bad #nchat -1:35 PM Mar 2nd, 2013
  • stridesagainstN @THEAdnAmA LOL I do, too, but mine doesn't care. At least it isn't during.... #Nchat -1:35 PM Mar 2nd, 2013
  • ItsJustMeMia Yay, @wehaveourhopes is here! #nchat :D -1:35 PM Mar 2nd, 2013
  • TheRealMikeHunt A3. I'll answer 4 my gf. I tell not 2 bother me when I sleep and she listens. No matter the demand concerning #Narcolepsy she follows #NChat -1:35 PM Mar 2nd, 2013
  • convergecollide .@stridesagainstN that seems like good relationship advice in general! #nchat -1:36 PM Mar 2nd, 2013
  • kathylovesmusic #nchat A2: maybe some legal disclaimers, or a resource hotline number, or a release of medical information between dr and employer? -1:36 PM Mar 2nd, 2013
  • catthoma @THEAdnAmA haha! Hubby finds the #cataplexy /sex combo hilarious. Boys will be boys right? #nchat -1:36 PM Mar 2nd, 2013
  • TheRealMikeHunt @THEAdnAmA But that;s our job? #NChat -1:36 PM Mar 2nd, 2013
  • mama_beers @TheRealMikeHunt @ItsJustMeMia #nchat Good for him??? he got fired & hasnt been able to get pt job since. #confused -1:36 PM Mar 2nd, 2013
  • wehaveourhopes #nchat A2: We need our own tees! It is the best way to get the message across IMO. If ppl want to learn more, they can ask what it's all abt -1:36 PM Mar 2nd, 2013
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