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March 2nd, 2013 #NChat

03/02/13

  03:03:00 pm, by The Dreamer   , 6880 words  
Categories: mSpew

March 2nd, 2013 #NChat

  • catthoma Q5. #PWN- what help would be useful to you to make your daily life easier that you don't currently receive? #NChat -1:47 PM Mar 2nd, 2013
  • mama_beers @TheRealMikeHunt @ItsJustMeMia no worries my friend. thanks #nchat -1:48 PM Mar 2nd, 2013
  • jh_dance “@TheRealMikeHunt: Q3. For those who support someone w/narc - what struggles do you face trying to be supportive? #NChat” @Elemonator21 -1:48 PM Mar 2nd, 2013
  • stridesagainstN @kathylovesmusic Thank you! I will make sure this gets posted in the recap on my blog and in the resources section. #Nchat -1:48 PM Mar 2nd, 2013
  • jamesgblackwell Hi #nchat . I'm the hubby of @NatalieBlackwel and the dad of an 8yo with #Narcolepsy. Sorry for being late to introduce myself! -1:48 PM Mar 2nd, 2013
  • TheRealMikeHunt @sarahkbeau Show them the true meaning of being wrong, by just continuing to kick ass without their "kid gloves" #NChat -1:48 PM Mar 2nd, 2013
  • stridesagainstN A5. I need a damn housekeeper lol. #Nchat -1:48 PM Mar 2nd, 2013
  • TheRealMikeHunt @kathylovesmusic @stridesagainstN @convergecollide Thx lady #NChat -1:49 PM Mar 2nd, 2013
  • stridesagainstN Hi, @jamesgblackwell! Welcome! #Nchat -1:49 PM Mar 2nd, 2013
  • catthoma @stridesagainstN @kathylovesmusic I'll be using those too! Thanks for sharing! #nchat -1:49 PM Mar 2nd, 2013
  • THEAdnAmA @stridesagainstN I second that!!! #NCHAT HA HA! -1:49 PM Mar 2nd, 2013
  • convergecollide @jamesgblackwell @natalieblackwel hi to both of you! Hope that our little #narcolepsyfamily can be of help to you and your son :) #nchat -1:49 PM Mar 2nd, 2013
  • convergecollide A5: an extra 2-3 hours in a day would be super helpful.... #nchat -1:50 PM Mar 2nd, 2013
  • catthoma @jamesgblackwell @NatalieBlackwel Hi James! Welcome! I hope our #nchat 's can help you guys! -1:50 PM Mar 2nd, 2013
  • LawrenceChen Here, I found the @StageSong article in the wayback machine: http://t.co/DUhuP2ixqQ #nchat -1:50 PM Mar 2nd, 2013
  • TheRealMikeHunt @jamesgblackwell @NatalieBlackwel Welcome aboard! #NChat -1:50 PM Mar 2nd, 2013
  • stridesagainstN RT @catthoma: Q5. #PWN- what help would be useful to you to make your daily life easier that you dont currently receive? #Nchat -1:50 PM Mar 2nd, 2013
  • convergecollide @kathylovesmusic @stridesagainstn @therealmikehunt THANK YOU!!! #nchat -1:50 PM Mar 2nd, 2013
  • sarahkbeau @jamesgblackwell @NatalieBlackwel nice to meet you both. Glad to see you both working to understand and help out your kid! #Nchat -1:50 PM Mar 2nd, 2013
  • stridesagainstN A5. I also wish this city had better public transportation so I wouldn't have to drive as much. #Nchat -1:51 PM Mar 2nd, 2013
  • catthoma @convergecollide took the words off of my keyboard... A5. #nchat -1:51 PM Mar 2nd, 2013
  • LawrenceChen A5: yeah, a housekeeper would be great. A TARDIS would better. #nchat -1:51 PM Mar 2nd, 2013
  • sarahkbeau Q5: Scheduled universal nap time so that I don't feel like I am missing out on anything ;) ha too much to ask? #Nchat -1:51 PM Mar 2nd, 2013
  • kathylovesmusic #nchat A5: more hours in the day and working from home! Haha, a girl can dream. Still thankful for understanding employers! -1:52 PM Mar 2nd, 2013
  • NatalieBlackwel @sarahkbeau @jamesgblackwell Thanks Sarah. 12 months since dx now, but still learning something new every day #nchat -1:52 PM Mar 2nd, 2013
  • convergecollide @stridesagainstN Public transportation is such an important accessibility issue. As a society we really need to invest in it. #nchat -1:52 PM Mar 2nd, 2013
  • THEAdnAmA A5. More time to sleep, clean, cook. A more organized life so I can just make it through the day without being so frustrated. #NCHAT -1:52 PM Mar 2nd, 2013
  • stridesagainstN LOVE IT, @sarakbeau! Siestas for everyone! #Nchat -1:52 PM Mar 2nd, 2013
  • LawrenceChen A5: yeah, the ATA Bus service here has certainly helped my life #nchat -1:52 PM Mar 2nd, 2013
  • MaireadLawless @stridesagainstN Are you not afraid to fall asleep on public transport and end up somewhere you don't want to be?? #nchat -1:52 PM Mar 2nd, 2013
  • catthoma A5. An Easy Button? Honesty? I want to just sit those who aren't getting it in a room & force them to let me explain (w/ duct tape). #nchat -1:53 PM Mar 2nd, 2013
  • sarahkbeau @NatalieBlackwel Yes, always learning more! I use to go to a Support group here in my home town. Met many kids aged 7-14 with it... #Nchat -1:53 PM Mar 2nd, 2013
  • stridesagainstN A5. The ability to be more consistent with my schedule would help immensely. #Nchat -1:53 PM Mar 2nd, 2013
  • convergecollide Universal nap time sounds awesome. @sarahkbeau #nchat -1:53 PM Mar 2nd, 2013
  • TheRealMikeHunt A5. I don't have #cataplexy but it is my biggest fear in life. #Nchat -1:53 PM Mar 2nd, 2013
  • stridesagainstN @MaireadLawless I never take public transportation here. It's basically nonexistant in KC except for buses that are rarely on time #Nchat -1:53 PM Mar 2nd, 2013
  • sarahkbeau @NatalieBlackwel continued..its a hard transition for any kid especially with friends who have no idea what it is! #Nchat -1:54 PM Mar 2nd, 2013
  • sarahkbeau RT @stridesagainstN: LOVE IT, @sarakbeau! Siestas for everyone! #Nchat -1:54 PM Mar 2nd, 2013
  • catthoma @convergecollide @sarahkbeau I fully support this idea! #nchat -1:54 PM Mar 2nd, 2013
  • mama_beers @convergecollide @stridesagainstN #nchat so true, so scared every time my son leaves. thank god for twitter, i check up on him -1:54 PM Mar 2nd, 2013
  • TheRealMikeHunt A5. Just more time to sleep and eat healthy oh and a free pill to help me quit smoking. #Nchat -1:54 PM Mar 2nd, 2013
  • NatalieBlackwel @sarahkbeau we have a support group over here in Ireland too, and it's great. Especially for Ben, so he realises hes not the only one #nchat -1:54 PM Mar 2nd, 2013
  • stridesagainstN @MaireadLawless I just have to schedule my driving for times I'm most alert. #Nchat -1:54 PM Mar 2nd, 2013
  • wehaveourhopes @catthoma A5: I'd love to have discounts on pillows, mattresses & stuff. I really need a better mattress but they're so expensive =( #nchat -1:55 PM Mar 2nd, 2013
  • LawrenceChen @TheRealMikeHunt I've wondered if #cataplexy can get worse....not sure I could handle that. #nchat -1:55 PM Mar 2nd, 2013
  • jamesgblackwell Q5: Siestas being commonplace here like they are in Spain and other hot countries would make Ben's naps at school seem less unusual! #nchat -1:55 PM Mar 2nd, 2013
  • MaireadLawless @stridesagainstN My 8 year old PWN boy falls asleep in the car on some journeys. I'd be worried for him on a bus!! #nchat -1:55 PM Mar 2nd, 2013
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