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March 2nd, 2013 #NChat

03/02/13

  03:03:00 pm, by The Dreamer   , 6880 words  
Categories: mSpew

March 2nd, 2013 #NChat

  • catthoma Those are all the pre-planned questions for this month's #nchat! Thanks all for jumping in! Our announcement coming in just a few... -2:01 PM Mar 2nd, 2013
  • stridesagainstN Thanks, everyone, for another fantastic chat! I've got to go take my nap now! I'll get the recap posted today or tomorrow. #Nchat -2:02 PM Mar 2nd, 2013
  • TheRealMikeHunt I will do my best to catch up later. Hopefully @stridesagainstN will have a recap on her blog soon of our #Nchat -2:02 PM Mar 2nd, 2013
  • sarahkbeau A6: I've been lucky and haven't had Cataplexy for 2 years and having a routine etc. I know one day it will return though. I can wait #Nchat -2:02 PM Mar 2nd, 2013
  • sarahkbeau @NatalieBlackwel yes please do! Thanks! #Nchat -2:02 PM Mar 2nd, 2013
  • catthoma @stridesagainstN Oh wow! I hadn't thought of that! I love that idea! #nchat -2:02 PM Mar 2nd, 2013
  • kathylovesmusic #nchat A6: I don't, except to my boyfriend. I point out when my knees go weak, when he's making me laugh so hard I go limp, or tiredness -2:02 PM Mar 2nd, 2013
  • LawrenceChen The 5 primary symptoms of #narcolepsy - EDS/hypersomnia, Cataplexy, Sleep Paralysis, HH, and Disrupted Nighttime Sleep #nchat -2:03 PM Mar 2nd, 2013
  • ItsJustMeMia #nchat A6 I have a med ID bracelet but it's so ugly. I do carry the card that came w/it in my wallet, but I never go anywhere by myself. -2:03 PM Mar 2nd, 2013
  • catthoma @TheRealMikeHunt *hugs* #PartnerInCrime #nchat -2:03 PM Mar 2nd, 2013
  • wehaveourhopes @stridesagainstN A6: Hubby sees it, he says it looks weird, but others never recognised my cataplexy. #Nchat Let doctors know, though. -2:03 PM Mar 2nd, 2013
  • MaireadLawless @stridesagainstN That's a great idea! some kids here are against the idea tho as they don't want to be seen as different #nchat -2:03 PM Mar 2nd, 2013
  • THEAdnAmA @stridesagainstN That is a great idea. #NCHAT -2:03 PM Mar 2nd, 2013
  • catthoma Big announcement @TheRealMikeHunt and I have been excited to announce? We've created a #narcolepsy website! #nchat -2:04 PM Mar 2nd, 2013
  • MaireadLawless @stridesagainstN But there are some great jewellery items available now that don't look like medic alerts. Not for guys tho #nchat -2:04 PM Mar 2nd, 2013
  • kathylovesmusic #nchat I guess it's just interesting how we can have narcolepsy, hypersomnia, and cataplexy but with varying degrees of each -2:04 PM Mar 2nd, 2013
  • LawrenceChen So far #cataplexy is something I forget that I have since I've been on Xyrem. Which has made it bad when it comes along to remind me #nchat -2:05 PM Mar 2nd, 2013
  • catthoma We are still building and would love your thoughts but everyone please check out: http://t.co/gfH9Czt2kq! #nchat -2:05 PM Mar 2nd, 2013
  • ItsJustMeMia #nchat I've found some cute custom made Med ID bracelets on eBay but they're kinda expensive, they don't "look" like the ugly ID bracelets. -2:05 PM Mar 2nd, 2013
  • mama_beers @catthoma @TheRealMikeHunt #nchat awesome! tell me more :) -2:06 PM Mar 2nd, 2013
  • stridesagainstN @MaireadLawless There are a couple of ladies on Facebook that make medical jewelry that is beautiful! I just need to do it. #Nchat -2:06 PM Mar 2nd, 2013
  • convergecollide @catthoma so excited about this!!!! #nchat -2:06 PM Mar 2nd, 2013
  • MaireadLawless @catthoma Exciting!!!! #nchat -2:06 PM Mar 2nd, 2013
  • NatalieBlackwel @catthoma @TheRealMikeHunt wow - well done guys - I'll have a look around it this evening #nchat -2:06 PM Mar 2nd, 2013
  • catthoma @mama_beers @TheRealMikeHunt it's http://t.co/gfH9Czt2kq and we are trying to pull all of the resources available into one location! #nchat -2:07 PM Mar 2nd, 2013
  • kathylovesmusic #nchat I guess it's just interesting how we can have narcolepsy, hypersomnia, cataplexy, etc. but with varying degrees of each -2:07 PM Mar 2nd, 2013
  • convergecollide @ItsJustMeMia S found a website with some cute ones the other day - http://t.co/kyDs5KVjZE. Some cheaper options, some less so. #nchat -2:07 PM Mar 2nd, 2013
  • MaireadLawless @stridesagainstN I think some cool boy ones on leather straps would be good! #nchat -2:07 PM Mar 2nd, 2013
  • THEAdnAmA @catthoma @TheRealMikeHunt This is awesome guys!! #NCHAT -2:08 PM Mar 2nd, 2013
  • LawrenceChen oh yeah...I was going to pledge for the Boston Marathon.... #nchat -2:08 PM Mar 2nd, 2013
  • ItsJustMeMia #nchat Oh yay, a website! @catthoma & @therealmikehunt thank you so much for your hard work on this! ((hugs)) -2:08 PM Mar 2nd, 2013
  • sarahkbeau @catthoma you should create a blog roll page. So many people of varying ages with their struggles and successes written down :) #Nchat -2:08 PM Mar 2nd, 2013
  • catthoma @MaireadLawless thanks! I've been so nervous, excited and anxious to get the word out! :) #nchat -2:08 PM Mar 2nd, 2013
  • catthoma @NatalieBlackwel @TheRealMikeHunt thanks Natalie! Please send us any feedback as it's still a work in progress! #nchat -2:09 PM Mar 2nd, 2013
  • sarahkbeau @catthoma looks good so far! Thanks for putting it together!! #muchappreciated #Nchat -2:09 PM Mar 2nd, 2013
  • wehaveourhopes Thx for a great #nchat! Always so much input coming from you, it's overwhelming. Have a good night/rest of the day. :) #narcolepsyfamily -2:10 PM Mar 2nd, 2013
  • catthoma @THEAdnAmA @TheRealMikeHunt Aww! Thanks! We're excited! #nchat -2:10 PM Mar 2nd, 2013
  • MaireadLawless @convergecollide @stridesagainstn excellent. Thanks! #nchat -2:10 PM Mar 2nd, 2013
  • ItsJustMeMia @maireadlawless Do you guys have http://t.co/I76WAfugEw access over there? Lots of ppl will custom make you anything you want. :) #nchat -2:13 PM Mar 2nd, 2013
  • convergecollide Okay, followers, #nchat is over - sorry if it was annoying/not sorry if you learned something! :) -2:13 PM Mar 2nd, 2013
  • catthoma I drew the art on there. Still working on the drawing of Mike... gloves on the front page will be my new tattoo! #nchat -2:13 PM Mar 2nd, 2013
  • MaireadLawless @ItsJustMeMia I'm not sure! Never Even bought off eBay!!!! I like to touch things and examine before I buy usually! #nchat -2:14 PM Mar 2nd, 2013
  • catthoma Thanks all for another exciting #nchat! 4/6 will be our next one- time TBD! -2:15 PM Mar 2nd, 2013
  • ItsJustMeMia @maireadlawless --is all handmade or vintage items, no commercial items are allowed, sellers are SUPER nice & accommodating. #nchat -2:16 PM Mar 2nd, 2013
  • mama_beers Sorry if I annoyed anyone with my #nchat! Just trying to learn all I can for son! Thanks for understanding! #narcolepsyprobs -2:17 PM Mar 2nd, 2013
  • catthoma I'm logging out for now but anyone interested in adding their story on the website- just DM me! #narcolepsy #narcolepsyyousillybitch #nchat -2:18 PM Mar 2nd, 2013
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