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April 6th, 2013 #NChat

04/06/13

  08:43:00 pm, by The Dreamer   , 8147 words  
Categories: mSpew

April 6th, 2013 #NChat

  • catthoma Q2: Have you noticed narcolepsy symptoms get better or worse during certain seasons? #Nchat -4:21 PM Apr 6th, 2013
  • NatalieBlackwel @mary7511 you may want to change your settings so it's not posting to Facebook also Mary.. #nchat -4:21 PM Apr 6th, 2013
  • essoblu #Nchat my specialist wants to remove my REM sleep = remove my dreams! -4:22 PM Apr 6th, 2013
  • mitdoc RT @catthoma: Q2: Have you noticed narcolepsy symptoms get better or worse during certain seasons? #Nchat -4:22 PM Apr 6th, 2013
  • stridesagainstN A2: Winter was really tough. I just wanted to hibernate. Summer heat is also exhausting. #nchat -4:22 PM Apr 6th, 2013
  • convergecollide @RedBradshaw I have tried running in the past and it would make me really sleepy. I try to get exercise but not too strenuous. #Nchat -4:22 PM Apr 6th, 2013
  • TheRealMikeHunt @catthoma start vaping like me #Nchat -4:22 PM Apr 6th, 2013
  • catthoma @MaireadLawless @TheRealMikeHunt meh. It's a stress reliever for me. My excuse to 'walk away'. Not a healthy stress reliever... #nchat -4:22 PM Apr 6th, 2013
  • MaireadLawless @catthoma That's interesting. Am trying to think about how that affects my boy b #nchat -4:22 PM Apr 6th, 2013
  • NatalieBlackwel A2 - deffo harder in winter with bad weather, being stuck indoors and no sunshine #ireland #nchat -4:23 PM Apr 6th, 2013
  • essoblu #Nchat does anyone get flashing lights when they close their eyes? -4:23 PM Apr 6th, 2013
  • TheRealMikeHunt RT @catthoma: Q2: Have you noticed narcolepsy symptoms get better or worse during certain seasons? #Nchat -4:23 PM Apr 6th, 2013
  • jamesgblackwell Q2: Our son seems to struggle more on dull days... i.e. 3/4 of the year in Ireland! :-/ #nchat -4:23 PM Apr 6th, 2013
  • MaireadLawless RT @mitdoc: RT @catthoma: Q2: Have you noticed narcolepsy symptoms get better or worse during certain seasons? #Nchat -4:23 PM Apr 6th, 2013
  • TheRealMikeHunt @essoblu how is that possible #Nchat -4:23 PM Apr 6th, 2013
  • THEAdnAmA Q2. #NCHAT I seem more tired during the winter but I spend little time outdoors too cold. maybe vitamin D def. Just started supplementing. -4:23 PM Apr 6th, 2013
  • stridesagainstN A2. I need to move somewhere that has a constant temperature of 80 degrees. #nchat -4:23 PM Apr 6th, 2013
  • mitdoc A2. The heat and humidity of summer is always hard to deal with, makes more tired. #Nchat -4:23 PM Apr 6th, 2013
  • TheRealMikeHunt RT @essoblu: #Nchat does anyone get flashing lights when they close their eyes? -4:24 PM Apr 6th, 2013
  • MaireadLawless @convergecollide @redbradshaw My son can't seem to manage much strenuous exercise. He overheats. #nchat -4:24 PM Apr 6th, 2013
  • TheRealMikeHunt @essoblu sometimes #Nchat -4:24 PM Apr 6th, 2013
  • LawrenceChen A2 Before Xyrem...spring to fall is when I enter my long sleep phase.... #nchat -4:24 PM Apr 6th, 2013
  • RedBradshaw 2) not sure...this has been my life for so long w/out a name...that I don't know #nchat -4:24 PM Apr 6th, 2013
  • convergecollide A2: my symptoms are always worse when I am too warm, so summer is hard, or winter if indoor heat is too high. #nchat -4:24 PM Apr 6th, 2013
  • stridesagainstN @essoblu I see flashing lights at times, mostly after I've been in the sun. #nchat -4:24 PM Apr 6th, 2013
  • e_q_u_a_l_i_t_y RT @jh_dance: A1: Absolutely. If I get upset about something, I need to sleep, immediately. Relieve stress? What?? #medschool #nchat -4:24 PM Apr 6th, 2013
  • jh_dance A2: Summer is bad because the heat zaps me. The rest of the year is difficult too, because I have school to attend/study for.#nchat -4:24 PM Apr 6th, 2013
  • catthoma A2. Spring is hard on me because of my allergies- don't get solid sleep. Winter- the cold makes me want to stay in bed. #nchat -4:24 PM Apr 6th, 2013
  • Enarcobut definately worse in winter #nchat -4:24 PM Apr 6th, 2013
  • LawrenceChen A2, it would get to the point where I get up, go to work, come home, go to sleep. #nchat -4:24 PM Apr 6th, 2013
  • NatalieBlackwel @MaireadLawless Ben also overheats very fast #nchat -4:24 PM Apr 6th, 2013
  • e_q_u_a_l_i_t_y RT @convergecollide: A1: yes, stress definitely increases my daytime sleepiness. Which in turn increases my stress... #Nchat -4:25 PM Apr 6th, 2013
  • jamesgblackwell @MaireadLawless Ben overheats too. He sweats more than any 8yo I've seen! #nchat -4:25 PM Apr 6th, 2013
  • TheRealMikeHunt A2. When it is super hot(I live in AZ) or super cold it always makes it hard to stay awake. #Nchat -4:25 PM Apr 6th, 2013
  • LawrenceChen A2: a couple times last year I'd lose an entire day sleeping... #nchat -4:25 PM Apr 6th, 2013
  • e_q_u_a_l_i_t_y RT @convergecollide: A2: my symptoms are always worse when I am too warm, so summer is hard, or winter if indoor heat is too high. #nchat -4:26 PM Apr 6th, 2013
  • MaireadLawless @NatalieBlackwel Wonder do any I the adults overheat compared to non-PWN peers? Guys - do you - when exercising? #nchat -4:26 PM Apr 6th, 2013
  • convergecollide @NatalieBlackwel @maireadlawless I wonder if overheating is common in people with narcolepsy? #nchat -4:26 PM Apr 6th, 2013
  • catthoma A2. I'm opposite of all of you- summer makes me happy to be up and moving! Barely nap... #nchat -4:26 PM Apr 6th, 2013
  • MaireadLawless RT @jamesgblackwell: @MaireadLawless Ben overheats too. He sweats more than any 8yo I've seen! #nchat -4:26 PM Apr 6th, 2013
  • sarahkbeau #Nchat I'm late, but I'm here for a smidgen before I leave to work again. -4:26 PM Apr 6th, 2013
  • TheRealMikeHunt @jamesgblackwell @MaireadLawless That is still mt fav thing to do, sweat. #Nchat -4:27 PM Apr 6th, 2013
  • RedBradshaw NGQ (New Girl ?): would heat affect because of the stimulation of the hypothalamus...making N worse @mitdoc or anyone? #nchat -4:27 PM Apr 6th, 2013
  • catthoma @convergecollide @NatalieBlackwel @MaireadLawless I've been sweating like no body's business. #nchat -4:27 PM Apr 6th, 2013
  • MaireadLawless @jamesgblackwell @NatalieBlackwel We should get the boys together in our trampoline to compete at sweating! #nchat. Think it's an N thing..? -4:27 PM Apr 6th, 2013
  • convergecollide @jamesgblackwell @maireadlawless during the day or at night too? I am like a fireball when I'm sleeping.... #nchat -4:27 PM Apr 6th, 2013
  • mitdoc @convergecollide My daughter seems to overheat very easily, making things worse for her. #Nchat -4:27 PM Apr 6th, 2013
  • stridesagainstN @convergecollide @NatalieBlackwel @maireadlawless I think #PWN have trouble regulating body temp. I'll have to find the link, though. #nchat -4:27 PM Apr 6th, 2013
  • convergecollide RT @MaireadLawless: @NatalieBlackwel Wonder do any I the adults overheat compared to non-PWN peers? Guys - do you - when exercising? #nchat -4:27 PM Apr 6th, 2013
  • THEAdnAmA #NCHAT Does the hypothalamus help regulate body temp? -4:27 PM Apr 6th, 2013
  • TheRealMikeHunt @MaireadLawless @NatalieBlackwel I sweat all the live long day, no matter what the weather is like. #Nchat -4:27 PM Apr 6th, 2013
  • Enarcobut @mitdoc #nchat I found last summer( my 1st summer on xyrem) I had very little narcolepsy symptions...winter just knocks me -4:27 PM Apr 6th, 2013
  • LawrenceChen A2 first time I went to bed on Friday night and found it to be Sunday. Second time, I went to bed Sunday and woke on Tuesday.... #nchat -4:27 PM Apr 6th, 2013
  • catthoma @sarahkbeau Hey there! We are talking about seasons and how they impact our symptoms. #nchat -4:28 PM Apr 6th, 2013
  • stridesagainstN @sarahkbeau Hi, Sarah! #nchat -4:28 PM Apr 6th, 2013
  • MaireadLawless @stridesagainstN @convergecollide @natalieblackwel I believe so! I think @nelapurrz confirmed that on FB at one stage. #nchat -4:28 PM Apr 6th, 2013
  • LawrenceChen A2 fortunately it was a long weekend, so I didn't need to be anywhere on Monday. #nchat -4:28 PM Apr 6th, 2013
  • RedBradshaw PS Big sweat-er (vs Sweater), too. Use the best prescription deodorant that has saved my life (and sweaters) #nchat -4:28 PM Apr 6th, 2013
  • essoblu #Nchat worse - definitely! More cataplexy drops & sleep paralysis -4:28 PM Apr 6th, 2013
  • catthoma @TheRealMikeHunt @MaireadLawless @NatalieBlackwel ditto. I asked my doc and she looked at me confused saying she didn't know. #nchat -4:29 PM Apr 6th, 2013
  • MaireadLawless @TheRealMikeHunt @jamesgblackwell hahaha. Gross #nchat. Must be a boy thing. -4:29 PM Apr 6th, 2013
  • mitdoc @RedBradshaw I don't think the heat sensitivity is directly related to the effect of the hypothalmus, but interesting idea. #Nchat -4:29 PM Apr 6th, 2013
  • stridesagainstN YES, body temp article :http://t.co/pt1RoCDuLw #nchat -4:29 PM Apr 6th, 2013
  • LawrenceChen Last year I went for it, I bought myself a Chilipad.... #nchat -4:29 PM Apr 6th, 2013
  • essoblu #Nchat what's #PWN -4:29 PM Apr 6th, 2013
  • TheRealMikeHunt @MaireadLawless @jamesgblackwell #word #Nchat -4:29 PM Apr 6th, 2013
  • sarahkbeau A2: I hate summer when everyone goes in the hot tub... i have to sit that one out..hot tub makes me narci out in t-2 minutes.#NChat -4:30 PM Apr 6th, 2013
  • catthoma @RedBradshaw what brand? I've been trying to find something. I'm going nuts! #nchat -4:30 PM Apr 6th, 2013
  • TheRealMikeHunt RT @RedBradshaw: PS Big sweat-er (vs Sweater), too. Use the best prescription deodorant that has saved my life (and sweaters) #nchat -4:30 PM Apr 6th, 2013
  • TheRealMikeHunt RT @essoblu: #Nchat what's #PWN -4:30 PM Apr 6th, 2013
  • stridesagainstN I also have an article about temperature differences in #PWN somewhere... #nchat -4:30 PM Apr 6th, 2013
  • convergecollide RT @stridesagainstN: YES, body temp article :http://t.co/pt1RoCDuLw #nchat -4:30 PM Apr 6th, 2013
  • sarahkbeau @stridesagainstN hey there! whats that website you use to tweet during the #Nchat -4:30 PM Apr 6th, 2013
  • MaireadLawless @LawrenceChen Are you on any meds? #nchat -4:30 PM Apr 6th, 2013
  • TheRealMikeHunt @essoblu people with narcolepsy #Nchat -4:30 PM Apr 6th, 2013
  • convergecollide @stridesagainstN thanks, Heather! #nchat -4:30 PM Apr 6th, 2013
  • catthoma @LawrenceChen what's that? #nchat -4:30 PM Apr 6th, 2013
  • TheRealMikeHunt RT @MaireadLawless: @TheRealMikeHunt @jamesgblackwell hahaha. Gross #nchat. Must be a boy thing. -4:31 PM Apr 6th, 2013
  • stridesagainstN @sarahkbeau http://t.co/hKmDHEzHD3 #nchat -4:31 PM Apr 6th, 2013
  • TheRealMikeHunt RT @sarahkbeau: @stridesagainstN hey there! whats that website you use to tweet during the #Nchat -4:31 PM Apr 6th, 2013
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