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April 6th, 2013 #NChat

04/06/13

  08:43:00 pm, by The Dreamer   , 8147 words  
Categories: mSpew

April 6th, 2013 #NChat

  • stridesagainstN Q3: Does eating a certain food or a certain amount of food increase sleepiness? #nchat -4:31 PM Apr 6th, 2013
  • essoblu #Nchat. Want to know how others regulate their catsplexy? Mine out of control. Just broke shoulder and wrist in fall #cataplexy -4:31 PM Apr 6th, 2013
  • TheRealMikeHunt RT @stridesagainstN: I also have an article about temperature differences in #PWN somewhere... #nchat -4:31 PM Apr 6th, 2013
  • LawrenceChen @MaireadLawless I'm on quite a few, though the list has gone down due to Xyrem. #nchat -4:31 PM Apr 6th, 2013
  • TheRealMikeHunt @stridesagainstN post it when you get a chance. #Nchat -4:31 PM Apr 6th, 2013
  • MaireadLawless @catthoma @therealmikehunt @natalieblackwel Well there you go. Tell your Doc all PWN sweat profusely!!!! #nchat -4:31 PM Apr 6th, 2013
  • LawrenceChen I'm been soaking the sheets completely in sweat every night for a week and half....I suspect a problem with my last T shot. #nchat -4:32 PM Apr 6th, 2013
  • RedBradshaw @catthoma Called Dry-sol (dr. prescription). Game-changer! #nchat -4:32 PM Apr 6th, 2013
  • TheRealMikeHunt RT @stridesagainstN: Q3: Does eating a certain food or a certain amount of food increase sleepiness? #nchat -4:32 PM Apr 6th, 2013
  • sarahkbeau @stridesagainstN thank you ! #NChat -4:32 PM Apr 6th, 2013
  • mitdoc A3. Carbs, although delicious, increase sleepiness a lot. #Nchat -4:32 PM Apr 6th, 2013
  • convergecollide A3: I'm working on figuring this out. In general eating a big meal --> nap time for me. #nchat -4:32 PM Apr 6th, 2013
  • TheRealMikeHunt A3. Its only when I eat too much which is always a problem. #Nchat -4:33 PM Apr 6th, 2013
  • catthoma @essoblu OUCH! Holy cow girl! I honestly hold on to things when I walk and sit down as often as possible to prevent falls. #nchat -4:33 PM Apr 6th, 2013
  • stridesagainstN This is soooo true. RT @mitdoc: A3. Carbs, although delicious, increase sleepiness a lot. #nchat -4:33 PM Apr 6th, 2013
  • mitdoc RT @stridesagainstN: Q3: Does eating a certain food or a certain amount of food increase sleepiness? #Nchat -4:33 PM Apr 6th, 2013
  • MaireadLawless RT @stridesagainstN: Q3: Does eating a certain food or a certain amount of food increase sleepiness? #nchat -4:33 PM Apr 6th, 2013
  • jh_dance @MaireadLawless @catthoma @TheRealMikeHunt @NatalieBlackwel I hate to throw your data, but I rarely sweat at all. #nchat -4:33 PM Apr 6th, 2013
  • sarahkbeau A3: turkey dinner makes me sleepy so quick. I don't eat turkey any other time... i swear it tires me out #NChat -4:33 PM Apr 6th, 2013
  • convergecollide @LawrenceChen I found I sweated a lot more at night when I was on xyrem. #nchat -4:33 PM Apr 6th, 2013
  • catthoma @RedBradshaw I'm going to have to ask! I am drenched by the time I get home from work everyday! #nchat -4:33 PM Apr 6th, 2013
  • THEAdnAmA Q3 #NCHAT GLUTEN IS THE DEVIL! ha ha Any grains. Too much sugar. If I have a crumb of bread I will pass out in my food. -4:33 PM Apr 6th, 2013
  • sarahkbeau A3: the hot foods makes me sleepier.. #NChat -4:33 PM Apr 6th, 2013
  • jh_dance A3: Heavy sugar or caffeine - both make me very sleepy. #nchat -4:33 PM Apr 6th, 2013
  • TheRealMikeHunt RT @RedBradshaw: @catthoma Called Dry-sol (dr. prescription). Game-changer! #nchat -4:33 PM Apr 6th, 2013
  • NatalieBlackwel A3 - interestingly Ben is gravitating away from bread etc and choosing to eat more fruit #nchat -4:34 PM Apr 6th, 2013
  • RedBradshaw 3. Carbs of all kinds (even good ones). 3rd week of no/low carbs..it sucks.. would love to try GF (serious challenge in a small town) #nchat -4:34 PM Apr 6th, 2013
  • TheRealMikeHunt @jh_dance @MaireadLawless @catthoma @NatalieBlackwel must be nice. #Nchat -4:34 PM Apr 6th, 2013
  • jamesgblackwell A3: Our lad seems less zonked after a fruit heavy lunch than he is after a sandwich or bread heavy lunch. #nchat -4:34 PM Apr 6th, 2013
  • catthoma @convergecollide @LawrenceChen Agreed. I turn instantly into an oven after taking it. #nchat -4:34 PM Apr 6th, 2013
  • TheRealMikeHunt RT @THEAdnAmA: Q3 #NCHAT GLUTEN IS THE DEVIL! ha ha Any grains. Too much sugar. If I have a crumb of bread I will pass out in my food. -4:34 PM Apr 6th, 2013
  • MaireadLawless @jh_dance @catthoma @therealmikehunt @natalieblackwel you seem rare in this group Jessica #nchat -4:34 PM Apr 6th, 2013
  • convergecollide A3 I recently gave up drinking soda, and I have a hunch the reduction in my sugar intake is probably helping reduce EDS for me. #nchat -4:35 PM Apr 6th, 2013
  • smamela Just lurking. Undergoing dx right now. #Nchat  -4:35 PM Apr 6th, 2013
  • LawrenceChen A3...yeah carbs. Though it makes it hard to gain weigth... #nchat -4:35 PM Apr 6th, 2013
  • stridesagainstN A3: Carb-heavy meals and too much sugar are no-nos for me. Gluten= sleepy headed with brain fog. #nchat -4:35 PM Apr 6th, 2013
  • catthoma A3. Nothing to add here. I don't eat much (my mom calls me a bird). So food is not something that plays a part for me. #nchat -4:35 PM Apr 6th, 2013
  • sarahkbeau @smamela welcome! :) #NChat -4:35 PM Apr 6th, 2013
  • TheRealMikeHunt @smamela Hi sara! Welcome to #Nchat -4:36 PM Apr 6th, 2013
  • convergecollide A3: I'm also cutting down on simple carbs, using whole grains whenever possible and increasing fruits and veggies intake. #nchat -4:36 PM Apr 6th, 2013
  • jh_dance @MaireadLawless @catthoma @TheRealMikeHunt @NatalieBlackwel I also have MS - it throws my symptoms. #nchat -4:36 PM Apr 6th, 2013
  • stridesagainstN @RedBradshaw Are you on Facebook? There's a #glutenfree #PWN group! It's amazing. #nchat -4:36 PM Apr 6th, 2013
  • catthoma @smamela lurk away! And feel free to ask any of us questions to help as you are undergoing your dx. We can help! :) #nchat -4:36 PM Apr 6th, 2013
  • e_q_u_a_l_i_t_y @stridesagainstN A3: Ice cream, always. #nchat -4:36 PM Apr 6th, 2013
  • TheRealMikeHunt @jh_dance @MaireadLawless @catthoma @NatalieBlackwel and you're going to mad school, what a champ. #Nchat -4:37 PM Apr 6th, 2013
  • MaireadLawless @convergecollide Interesting. So sugar & carbs. Pointing to a GF or Paleo type diet. #nchat -4:37 PM Apr 6th, 2013
  • TheRealMikeHunt @e_q_u_a_l_i_t_y @stridesagainstN Nadine!!!!!!!!!!!!!!!!!!!!!!!!!! #Nchat -4:37 PM Apr 6th, 2013
  • stridesagainstN @e_q_u_a_l_i_t_y ice cream has a lot of tryptophan if I recall correctly. #nchat -4:37 PM Apr 6th, 2013
  • RedBradshaw Suggestions on GF diet resources welcome (never heard of Paleo) #nchat -4:38 PM Apr 6th, 2013
  • jh_dance A3: And I did feel better when I wasn't eating gluten, but it's hard right now. Maybe going to try to restrict it more after school #nchat -4:38 PM Apr 6th, 2013
  • LawrenceChen Hmm, I was thinking I wanted some ice cream earlier.... #nchat -4:38 PM Apr 6th, 2013
  • MaireadLawless @jh_dance @catthoma @therealmikehunt @natalieblackwel I saw that on your biog. wow. And Med school. Some woman!! #nchat -4:38 PM Apr 6th, 2013
  • catthoma @TheRealMikeHunt @e_q_u_a_l_i_t_y @stridesagainstN She's here! :) #nchat -4:38 PM Apr 6th, 2013
  • TheRealMikeHunt @stridesagainstN @e_q_u_a_l_i_t_y I love it but cant eat it. heartburn city baby! #Nchat -4:39 PM Apr 6th, 2013
  • stridesagainstN So, if all of us know carbs increase sleepiness, we're all going to restrict them, right? LOL #nchat -4:39 PM Apr 6th, 2013
  • jh_dance @MaireadLawless @catthoma @TheRealMikeHunt @NatalieBlackwel Hah - some might call it stubborn! #nchat -4:40 PM Apr 6th, 2013
  • TheRealMikeHunt @LawrenceChen dont do it, its not worth it man! #Nchat -4:40 PM Apr 6th, 2013
  • stridesagainstN @RedBradshaw https://t.co/OlIvtYF8v3 Here's the Facebook group I was talking about. #nchat -4:40 PM Apr 6th, 2013
  • TheRealMikeHunt @stridesagainstN Never!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! #Nchat wait is there carbs in cheese? -4:40 PM Apr 6th, 2013
  • sarahkbeau @stridesagainstN its so hard to restrict my diet when I am a nanny for a family that has specific groceries. Oh well i get by.. aha #NChat -4:40 PM Apr 6th, 2013
  • MaireadLawless @stridesagainstN Plan to do this when my boy is older but right now he is too young to appreciate the advantages. #nchat -4:41 PM Apr 6th, 2013
  • catthoma A3. I'm working with a dietician. We calculated I'm eating less than 1,000 calories/day right now. I just don't eat much. Never have. #nchat -4:41 PM Apr 6th, 2013
  • MaireadLawless RT @stridesagainstN: So, if all of us know carbs increase sleepiness, we're all going to restrict them, right? LOL #nchat -4:41 PM Apr 6th, 2013
  • RedBradshaw @stridesagainstN Awesome...thanks! #nchat -4:41 PM Apr 6th, 2013
  • TheRealMikeHunt @stridesagainstN @RedBradshaw is that the group we're both in? #Nchat -4:41 PM Apr 6th, 2013
  • stridesagainstN @TheRealMikeHunt Cheese is low-carb. :) #nchat -4:41 PM Apr 6th, 2013
  • stridesagainstN @TheRealMikeHunt No, that's the gluten-free PWN group. #nchat -4:41 PM Apr 6th, 2013
  • MaireadLawless @jh_dance @catthoma @therealmikehunt @natalieblackwel well keep at it then. Stubborn has its benefits. #nchat -4:41 PM Apr 6th, 2013
  • LawrenceChen There was a wakefulness diet, which I recall was avoid carbs during the day and only have it at night, start with high protein, etc. #nchat -4:41 PM Apr 6th, 2013
  • TheRealMikeHunt @stridesagainstN ok then i'll work on it. I cant live without cheese #Nchat -4:42 PM Apr 6th, 2013
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