September 7th, 2013 #NChat »

October 5th, 2013 #NChat

10/16/13

  06:03:00 pm, by The Dreamer   , 7869 words  
Categories: mSpew

October 5th, 2013 #NChat

  • Heather Bertics @stridesagainstN ‑ Q5. If you or your loved one were free of #narcolepsy symptoms for one day, how would you spend the day? #Nchat #nchat ‑ 2013-10-05 16:45 - Question 5
  • Cat.. Kitty Cat @catthoma ‑ @jenniewakefield oh man honey! Positive vibes your way! #nchat ‑ 2013-10-05 16:45
  • Mairéad Lawless @MaireadLawless ‑ RT @TheRealMikeHunt: A4. I know I ask this every month but did you cure #narcolepsy yet? #Nchat ‑ 2013-10-05 16:46
  • Mark Patterson @mitdoc ‑ @TheRealMikeHunt Still working on it, Mike! #nchat ‑ 2013-10-05 16:46
  • Mike Hunt @TheRealMikeHunt ‑ @jenniewakefield Yowza! Does it work? #Nchat ‑ 2013-10-05 16:46
  • ~*Nadine*~ @herbstgesicht ‑ RT @Al_Greenstein: @MaireadLawless Sounds like my mom’s advice. #Nchat ‑ 2013-10-05 16:46
  • jenny wakefield @jenniewakefield ‑ @stridesagainstN puts a huge strain on my partner, its was bad before i came off medz, worse now an am only 7 weeks #Nchat ‑ 2013-10-05 16:46
  • Heather Bertics @stridesagainstN ‑ @jenniewakefield Early pregnancy and late pregnancy when progesterone levels are highest will be hardest parts most likely. #nchat ‑ 2013-10-05 16:47
  • jenny wakefield @jenniewakefield ‑ @catthoma thankyou means a lot :) #Nchat ‑ 2013-10-05 16:47
  • Mark Patterson @mitdoc ‑ RT @stridesagainstN: Q5. If you or your loved one were free of #narcolepsy symptoms for one day, how would you spend the day? #Nchat #nchat ‑ 2013-10-05 16:47
  • Shauna Scott @Slsco84 ‑ RT @stridesagainstN: Q5. If you or your loved one were free of #narcolepsy symptoms for one day, how would you spend the day? #Nchat #nchat ‑ 2013-10-05 16:47
  • Amanda Maldonado @THEAdnAmA ‑ A5. Scuba dive on a coral reef!!!!! #NCHAT ‑ 2013-10-05 16:47 - Answer to question 5
  • Mike Hunt @TheRealMikeHunt ‑ @mitdoc just checking in. If I won the lotterry for research money, would that help #Nchat ‑ 2013-10-05 16:47
  • ~*Nadine*~ @herbstgesicht ‑ @Al_Greenstein @MaireadLawless Oh, yes. Fresh air! Even my doc got mad at my mom once…. #nchat ‑ 2013-10-05 16:47
  • Mark Patterson @mitdoc ‑ RT @catthoma: #nchat A5. Do activities with emotion- go to Disneyland, go ghost hunting, go to a comedy show… All on the same day cause I… ‑ 2013-10-05 16:49
  • Christy Correll @denverish ‑ @jenniewakefield I am surprised you are able to keep up with this conversation (sans meds)! Good for you! And what is your secret? #Nchat ‑ 2013-10-05 16:49
  • Mia @ItsJustMeMia ‑ A5: I would drive until I couldn’t stand it any more. I miss driving the most. #nchat ‑ 2013-10-05 16:50 - Answer to question 5
  • Heather Bertics @stridesagainstN ‑ A5. I’d try rock climbing! Hubby thinks it is too dangerous with #cataplexy. #nchat ‑ 2013-10-05 16:50 - Answer to question 5
  • jenny wakefield @jenniewakefield ‑ @TheRealMikeHunt doubt he will put me on it now til after pregnancy and by then my body will have had a break from medz #Nchat ‑ 2013-10-05 16:50
  • Shauna Scott @Slsco84 ‑ A5. I would power through all the essays needed to finish my Masters! (its a lot of essays) #nchat ‑ 2013-10-05 16:50 - Answer to question 5
  • Lawrence Chen @LawrenceChen ‑ A5: I don’t know if I’m capable of doing anything different with my life, if it were to happen… #nchat ‑ 2013-10-05 16:50 - Answer to question 5
  • Mike Hunt @TheRealMikeHunt ‑ A5. I would stay up for 24 hours and drive all night. Then get my old job back #Nchat ‑ 2013-10-05 16:51 - Answer to question 5
  • jenny wakefield @jenniewakefield ‑ @denverish my secret is i come alive at night. Its almost 11pm here in uk an everyones in bed #Nchat ‑ 2013-10-05 16:51
  • Heather Bertics @stridesagainstN ‑ @Slsco84 How responsible of you. :) I feel like a slacker now! Ha! #nchat ‑ 2013-10-05 16:51
  • Mike Hunt @TheRealMikeHunt ‑ @jenniewakefield I hope you find something that works. #Nchat ‑ 2013-10-05 16:52
  • Mairéad Lawless @MaireadLawless ‑ A5 - spending any day without scheduling naps and medication would be a treat #nchat ‑ 2013-10-05 16:52 - Answer to question 5
  • Mark Patterson @mitdoc ‑ RT @MaireadLawless: A5 - spending any day without scheduling naps and medication would be a treat #nchat ‑ 2013-10-05 16:52
  • Mairéad Lawless @MaireadLawless ‑ RT @TheRealMikeHunt: A5. I would stay up for 24 hours and drive all night. Then get my old job back #Nchat ‑ 2013-10-05 16:52
  • ~*Nadine*~ @herbstgesicht ‑ A5: Read all of my fav books. I miss reading so much… I just can’t stay awake. #nchat ‑ 2013-10-05 16:52 - Answer to question 5
  • Heather Bertics @stridesagainstN ‑ @MaireadLawless Absolutely! Just being spontaneous with no repercussions would be lovely. #nchat ‑ 2013-10-05 16:53
  • Lawrence Chen @LawrenceChen ‑ @lauramariee19 I was thinking about that the other day….wonder if she becomes hypoxic when she has cataplexy. #nchat ‑ 2013-10-05 16:53
  • Shauna Scott @Slsco84 ‑ @stridesagainstN haha! Its the thing that weighs on my mind most, being incapable of finishing my study. #nchat ‑ 2013-10-05 16:53
  • Mairéad Lawless @MaireadLawless ‑ RT @stridesagainstN: @MaireadLawless Absolutely! Just being spontaneous with no repercussions would be lovely. #nchat ‑ 2013-10-05 16:53
  • Anna Tzenova @AnnaSupernova_ ‑ A5. I would treasure being able to wake up happy and refreshed and not having to take any medication! #Nchat ‑ 2013-10-05 16:53 - Answer to question 5
  • jenny wakefield @jenniewakefield ‑ Can someone update me on Q4-5.. i see answers but no Qs #Nchat ‑ 2013-10-05 16:53
  • Mike Hunt @TheRealMikeHunt ‑ A5. Just live a happy worry free life and then cure cancer #Nchat no biggie ‑ 2013-10-05 16:53 - Answer to question 5
  • Mairéad Lawless @MaireadLawless ‑ RT @herbstgesicht: A5: Read all of my fav books. I miss reading so much… I just can’t stay awake. #nchat ‑ 2013-10-05 16:54
  • Lawrence Chen @LawrenceChen ‑ @lauramariee19 she had said when she has cataplexy she would often laugh uncontrollably… #nchat ‑ 2013-10-05 16:54
  • Mairéad Lawless @MaireadLawless ‑ RT @AnnaSupernova_: A5. I would treasure being able to wake up happy and refreshed and not having to take any medication! #Nchat ‑ 2013-10-05 16:54
  • Shauna Scott @Slsco84 ‑ @jenniewakefield how did u find melatonin? Did i work at all? #nchat ‑ 2013-10-05 16:54
  • Mark Patterson @mitdoc ‑ @TheRealMikeHunt A day in Arizona must last longer than here in Virginia… #nchat ‑ 2013-10-05 16:54
  • Cat.. Kitty Cat @catthoma ‑ #nchat ok my loves, I need to sign out! Made it to my destination! ‘See’ you next month! ‑ 2013-10-05 16:54
  • Mike Hunt @TheRealMikeHunt ‑ @jenniewakefield Q4. What’s the strangest therapy you’ve heard of to treat #narcolepsy symptoms? #Nchat ‑ 2013-10-05 16:55
  • Laura Bowers @lauramariee19 ‑ Something with laughter and driving a long distance… Haha, not really. Probably just hiking some long park trail. #Nchat ‑ 2013-10-05 16:55
  • Heather Bertics @stridesagainstN ‑ @catthoma See ya, Cat! #nchat ‑ 2013-10-05 16:55
  • Mark Patterson @mitdoc ‑ @catthoma Bye, Cat. #nchat ‑ 2013-10-05 16:55
  • ~*Nadine*~ @herbstgesicht ‑ RT @AnnaSupernova_: A5. I would treasure being able to wake up happy and refreshed and not having to take any medication! #Nchat ‑ 2013-10-05 16:55
  • jenny wakefield @jenniewakefield ‑ @Slsco84 i never got chance to get used to it. I only got the new prescription 3 weeks before i found out i was pregnant.. #nchat ‑ 2013-10-05 16:55
  • Laura Bowers @lauramariee19 ‑ RT @AnnaSupernova_: A5. I would treasure being able to wake up happy and refreshed and not having to take any medication! #Nchat ‑ 2013-10-05 16:55
  • Mike Hunt @TheRealMikeHunt ‑ @jenniewakefield Q5. If you or your loved one were free of #narcolepsy symptoms for one day, how would you spend the day? #nchat ‑ 2013-10-05 16:55
  • Dawn @makeDawnrun ‑ Revised A1: Falling asleep on bus home every day and waking up with patch of drool :( #nchat ‑ 2013-10-05 16:55
  • Mike Hunt @TheRealMikeHunt ‑ @mitdoc it never seems to end #Nchat ‑ 2013-10-05 16:56
  • Heather Bertics @stridesagainstN ‑ @THEAdnAmA I had problems with snorkeling, too. :( Saw a cool fish and that was the end of it. Stupid #cataplexy #Nchat ‑ 2013-10-05 16:56
  • Lawrence Chen @LawrenceChen ‑ But, how would you know to not take your medication the morning you woke up free of #narcolepsy symptoms? #nchat ‑ 2013-10-05 16:56
  • Shauna Scott @Slsco84 ‑ @jenniewakefield Ah. I got some w/o prescription. Bit reluctant to try it. But i will #nchat ‑ 2013-10-05 16:56
  • Mia @ItsJustMeMia ‑ @catthoma Have a good day, hon! #nchat ‑ 2013-10-05 16:56
  • Mike Hunt @TheRealMikeHunt ‑ Thx to everybody coming out to this months #Nchat. if you have questions please send them to us. Thx @mitdoc for helping out ‑ 2013-10-05 16:57
  • jenny wakefield @jenniewakefield ‑ A4. Gluten free diet.. and some therapy about a candle down the ear. #nchat ‑ 2013-10-05 16:57 - Answer to question 4
  • Heather Bertics @stridesagainstN ‑ @LawrenceChen Waking up refreshed instead of feeling like a zombie would be the first sign for me. #nchat ‑ 2013-10-05 16:57
  • Christy Correll @denverish ‑ A5: I would climb a 14er here in CO! #nchat ‑ 2013-10-05 16:57 - Answer to question 5
  • Shauna Scott @Slsco84 ‑ RT @LawrenceChen: But, how would you know to not take your medication the morning you woke up free of #narcolepsy symptoms? #nchat ‑ 2013-10-05 16:57
  • Lawrence Chen @LawrenceChen ‑ I have mornings where, I’ll feel so good, that it takes extra effort to remember to take my meds. #nchat ‑ 2013-10-05 16:58
  • Shauna Scott @Slsco84 ‑ RT @stridesagainstN: @LawrenceChen Waking up refreshed instead of feeling like a zombie would be the first sign for me. #nchat ‑ 2013-10-05 16:58
  • Mark Patterson @mitdoc ‑ @TheRealMikeHunt Always a pleasure. I hope to see lots of you in person at the Narcolepsy Network Conference in Atlanta in 2 weeks! #nchat ‑ 2013-10-05 16:58
  • Laura Bowers @lauramariee19 ‑ @makeDawnrun A1. Ohmygoodness, any nap anywhere with drool. #nchat #narcolepsyproblems ‑ 2013-10-05 16:58
  • Mairéad Lawless @MaireadLawless ‑ RT @stridesagainstN: @THEAdnAmA I had problems with snorkeling, too. :( Saw a cool fish and that was the end of it. Stupid #cataplexy #Nchat ‑ 2013-10-05 16:58
  • Shauna Scott @Slsco84 ‑ RT @TheRealMikeHunt: Thx to everybody coming out to this months #Nchat. if you have questions please send them to us. Thx @mitdoc for helpi… ‑ 2013-10-05 16:58
  • jenny wakefield @jenniewakefield ‑ A5. I would spend the day doing something amazing with my benjamin. He misses out on time with mummy #heartbreaking #nchat ‑ 2013-10-05 16:59 - Answer to question 5
  • Mairéad Lawless @MaireadLawless ‑ RT @TheRealMikeHunt: Thx to everybody coming out to this months #Nchat. if you have questions please send them to us. Thx @mitdoc for helpi… ‑ 2013-10-05 16:59
  • Lawrence Chen @LawrenceChen ‑ Things’ll be horrible in the afternoon….and I’ll come home from work to find out, I had forgotten to take my pills in the morning. #nchat ‑ 2013-10-05 16:59
  • Heather Bertics @stridesagainstN ‑ Thanks so much for a great chat! Love seeing so many people! I’ve got the Qs and As ready to post in my blog later tonight/tomorrow. #nchat ‑ 2013-10-05 16:59
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