September 7th, 2013 #NChat »

October 5th, 2013 #NChat

10/16/13

  06:03:00 pm, by The Dreamer   , 7869 words  
Categories: mSpew

October 5th, 2013 #NChat

  • Christy Correll @denverish ‑ @stridesagainstN @THEAdnAmA I’ve wondered about scuba diving. Even though my C is controlled it just seems like a bad idea … #nchat ‑ 2013-10-05 16:59
  • Brendon O’ Donnell @6Dangermouse  ‑ Wvwning any pwns still on tonight #nchat ‑ 2013-10-05 16:59
  • Dawn @makeDawnrun ‑ @lauramariee19 I know :( It’s mortifying. #nchat ‑ 2013-10-05 17:00
  • ~*Nadine*~ @herbstgesicht ‑ RT @makeDawnrun: Revised A1: Falling asleep on bus home every day and waking up with patch of drool :( #nchat ‑ 2013-10-05 17:00
  • Lawrence Chen @LawrenceChen ‑ There’s just be days in my cycle where I’m not a zombie when I get up, just as there’ll be days where I wish I didn’t have to get up. #nchat ‑ 2013-10-05 17:00
  • Mike Hunt @TheRealMikeHunt ‑ @mitdoc that sounds like a beautiful dream #nchat ‑ 2013-10-05 17:00
  • jenny wakefield @jenniewakefield ‑ @THEAdnAmA i was gonna try the gluten free but all my favourite foods are full of it. And ive got crohns so i need certain foods #nchat ‑ 2013-10-05 17:00
  • Heather Bertics @stridesagainstN ‑ @denverish @THEAdnAmA My C has not been well controlled yet. I know of another PWN with well controlled C who does SCUBA no prob. #nchat ‑ 2013-10-05 17:00
  • Mike Hunt @TheRealMikeHunt ‑ RT @lauramariee19: @makeDawnrun A1. Ohmygoodness, any nap anywhere with drool. #nchat #narcolepsyproblems ‑ 2013-10-05 17:00
  • Mike Hunt @TheRealMikeHunt ‑ @6Dangermouse Im still here #nchat ‑ 2013-10-05 17:00
  • Shauna Scott @Slsco84 ‑ Thanks @stridesagainstN and @TheRealMikeHunt for this months #nchat. And everyone for a great chat! ‑ 2013-10-05 17:01
  • ~*Nadine*~ @herbstgesicht ‑ @makeDawnrun Yeees! I remember that, too. Once some1 even took a pic. When I woke they said it was b/c of my beautiful eyes. SURE! #nchat ‑ 2013-10-05 17:01
  • Mia @ItsJustMeMia ‑ Thanks everyone for the #nchat! :) And thanks for reminding me @therealmikehunt! <3 ‑ 2013-10-05 17:01
  • jenny wakefield @jenniewakefield ‑ @LawrenceChen i smoke cannabis. Doesnt help with EDS but helps massivly with mood swings and cataplexy #nchat ‑ 2013-10-05 17:02
  • Heather Bertics @stridesagainstN ‑ @ItsJustMeMia Great to have you this month! #nchat ‑ 2013-10-05 17:02
  • Mike Hunt @TheRealMikeHunt ‑ @ItsJustMeMia np #nchat ‑ 2013-10-05 17:02
  • Mike Hunt @TheRealMikeHunt ‑ @Slsco84 @stridesagainstN np #nchat ‑ 2013-10-05 17:02
  • Mia @ItsJustMeMia ‑ @stridesagainstN Great to be back. I’m going to try to remember without prodding next month. :) #nchat ‑ 2013-10-05 17:03
  • jenny wakefield @jenniewakefield ‑ @THEAdnAmA i can see the benefits but i struggle with mu weight. I always seem to be underweight #nchat ‑ 2013-10-05 17:03
  • Mike Hunt @TheRealMikeHunt ‑ @6Dangermouse yes sir every month on the first Saturday at 5pm est. Everyone is welcome. Is there anything you want to know #nchat ‑ 2013-10-05 17:04
  • Dominick Evans @dominickevans ‑ @TheRealMikeHunt my girlfriend has #narcolepsy #nchat ‑ 2013-10-05 17:04
  • Tracey B @tjoybunker ‑ Is it too late to join #nchat ‑ 2013-10-05 17:04
  • Brendon O’ Donnell @6Dangermouse  ‑ Ji guys a pwn I know in us swears by injecting 2mil of adrenalin twice a day anyone hwars of that b4 #nchat ‑ 2013-10-05 17:05
  • Dominick Evans @dominickevans ‑ @TheRealMikeHunt Im Dominick. I’m 32 from Ohio. My girlfriend has #narcolepsy as a result of her thyroid condition #nchat ‑ 2013-10-05 17:05
  • Heather Bertics @stridesagainstN ‑ @tjoybunker Hi, Tracey! We actually just finished. You can still answer the questions if you want. We do use the hashtag all week. #nchat ‑ 2013-10-05 17:05
  • Lawrence Chen @LawrenceChen ‑ I’ve wondered about gluten free, but just remembering to eat can be a problem at times. #nchat ‑ 2013-10-05 17:05
  • Dawn @makeDawnrun ‑ @tjoybunker I think there are some pwn still chatting :) #nchat ‑ 2013-10-05 17:06
  • Lawrence Chen @LawrenceChen ‑ Plus, I’m back to worrying about being underweight…. #nchat ‑ 2013-10-05 17:06
  • Mike Hunt @TheRealMikeHunt ‑ @dominickevans hows it going Dominick. We do a #Nchat every month if she ever feels like joining us. ‑ 2013-10-05 17:06
  • Dominick Evans @dominickevans ‑ @TheRealMikeHunt @jenniewakefield I think we’d spend our days more active. A lot of times, she’s too tired, and I feel bad for her :( #nchat ‑ 2013-10-05 17:07
  • jenny wakefield @jenniewakefield ‑ @THEAdnAmA thats what i’m like.. but i never have much of an appetite #nchat ‑ 2013-10-05 17:07
  • Tracey B @tjoybunker ‑ Oh, sorry - probs with my twitter #nchat ‑ 2013-10-05 17:07
  • Lawrence Chen @LawrenceChen ‑ I used to be on the underweight side, struggling to put on…when suddenly it stopped being a problem. #nchat ‑ 2013-10-05 17:07
  • Christy Correll @denverish ‑ Thx, everyone! It was great to pop in for a few minutes! Love and Light to all. Ya’ll are awesome :) #nchat ‑ 2013-10-05 17:07
  • Mike Hunt @TheRealMikeHunt ‑ @6Dangermouse no thats a new one for me, what do they inject? #nchat ‑ 2013-10-05 17:07
  • Dominick Evans @dominickevans ‑ @LawrenceChen @TheRealMikeHunt sativa can help….it keeps me wired, when I’ve used it for pain. Indica tends to make people sleepy #nchat ‑ 2013-10-05 17:07
  • Tracey B @tjoybunker ‑ Can everyone/anyone read our tweets on nchat? #nchat ‑ 2013-10-05 17:08
  • Lawrence Chen @LawrenceChen ‑ And, then suddenly, I unexpectedly gained 40lbs a few times. Putting me on the overweight side. #nchat ‑ 2013-10-05 17:08
  • Mike Hunt @TheRealMikeHunt ‑ @dominickevans That sounds like a amazing day #nchat ‑ 2013-10-05 17:08
  • jenny wakefield @jenniewakefield ‑ @dominickevans we fully empathise with you on her tiredness.. i see the strain it has my partner when i’m asleep alot #nchat ‑ 2013-10-05 17:08
  • ~*Nadine*~ @herbstgesicht ‑ @6Dangermouse My natural adrenalin helps me w/that. #nchat A constant level of adrenalin damages the body more than it does it good? @mitdoc ‑ 2013-10-05 17:08
  • Mike Hunt @TheRealMikeHunt ‑ @6Dangermouse thats a really bad idea #nchat ‑ 2013-10-05 17:08
  • Dominick Evans @dominickevans ‑ @TheRealMikeHunt Ash does well working for herself, from home. She’s a writer. #nchat ‑ 2013-10-05 17:08
  • Shauna Scott @Slsco84 ‑ When does US daylight savings & my happiness end? @Slsco84 Yay! daylight savings starting lastnight means more reasonable 8am time of #nchat ‑ 2013-10-05 17:09
  • Mike Hunt @TheRealMikeHunt ‑ @denverish no you’re awesome #nchat ‑ 2013-10-05 17:09
  • Mike Hunt @TheRealMikeHunt ‑ @tjoybunker sorry lady #nchat ‑ 2013-10-05 17:09
  • Lawrence Chen @LawrenceChen ‑ But, since N dx and Xyrem…I’m back to the same weight range before the first time I gained a lot of weight unexpectedly. #nchat ‑ 2013-10-05 17:09
  • Dominick Evans @dominickevans ‑ @jenniewakefield I just miss her and worry about her :) #nchat ‑ 2013-10-05 17:09
  • Lawrence Chen @LawrenceChen ‑ @Slsco84 First Sunday in November #nchat ‑ 2013-10-05 17:09
  • Lawrence Chen @LawrenceChen ‑ So next month will still be good. #nchat ‑ 2013-10-05 17:10
  • Mike Hunt @TheRealMikeHunt ‑ @Slsco84 in about 3 weeks #nchat ‑ 2013-10-05 17:10
  • Dominick Evans @dominickevans ‑ @TheRealMikeHunt she also is tired all the time. It affects her daily life and frustrates her. #nchat ‑ 2013-10-05 17:11
  • jenny wakefield @jenniewakefield ‑ @dominickevans she is lucky to have a supportive partner.. #Nchat ‑ 2013-10-05 17:11
  • Mike Hunt @TheRealMikeHunt ‑ @dominickevans @AshtynLaw yes please do it. First Saturday of every month 5pm est #nchat ‑ 2013-10-05 17:11
  • Dominick Evans @dominickevans ‑ I think the judgment is the worst. People think she is lazy because she’s tired all the time. #nchat ‑ 2013-10-05 17:11
  • Brendon O’ Donnell @6Dangermouse  ‑ I sleep a day I sleep a week Not a sound Not a peep #nchat ‑ 2013-10-05 17:12
  • Mike Hunt @TheRealMikeHunt ‑ @dominickevans yeah life seems to have no place for naps sometimes #nchat ‑ 2013-10-05 17:12
  • Brendon O’ Donnell @6Dangermouse  ‑ Never used titter b4 hard 2 follow lol #nchat ‑ 2013-10-05 17:13
  • ~*Nadine*~ @herbstgesicht ‑ RT @denverish: Thx, everyone! It was great to pop in for a few minutes! Love and Light to all. Ya’ll are awesome :) #nchat ‑ 2013-10-05 17:13
  • Mike Hunt @TheRealMikeHunt ‑ @jenniewakefield @dominickevans indeed sometimes that’s a rare thing. #Nchat ‑ 2013-10-05 17:13
  • Shauna Scott @Slsco84 ‑ @LawrenceChen thanks. One more reasonable #nchat time then. Then back to sleeping thru it ‑ 2013-10-05 17:13
  • Tracey B @tjoybunker ‑ Thank you - #nchat ‑ 2013-10-05 17:13
  • Laura Bowers @lauramariee19 ‑ @LawrenceChen Xyrem has currently taken me to the underweight side of life… #nchat ‑ 2013-10-05 17:13
  • jenny wakefield @jenniewakefield ‑ @dominickevans unfortunatly we all get judged. Its lack of awareness. I know some great facebook groups for sufferers and loved ones #nchat ‑ 2013-10-05 17:13
  • Mike Hunt @TheRealMikeHunt ‑ @6Dangermouse it can be, @stridesagainstN always posts a report of #Nchat on her blog ‑ 2013-10-05 17:14
  • Mike Hunt @TheRealMikeHunt ‑ RT @6Dangermouse: I sleep a day I sleep a week Not a sound Not a peep #nchat ‑ 2013-10-05 17:14
  • Dominick Evans @dominickevans ‑ @TheRealMikeHunt she’s a screenwriter and Im a filmmaker. Our life can be busy. I see the strain on her sometimes. #nchat ‑ 2013-10-05 17:14
  • Mairéad Lawless @MaireadLawless ‑ RT @dominickevans: I think the judgment is the worst. People think she is lazy because she’s tired all the time. #nchat ‑ 2013-10-05 17:15
  • Dominick Evans @dominickevans ‑ @jenniewakefield that’d be awesome, if u’d b willing 2 share. I have MD, so I get judged for being in a wheelchair. PPL can be cruel #nchat ‑ 2013-10-05 17:15
  • Dawn @makeDawnrun ‑ #nchat It was great to chat to everyone but I’m off to sleep now! Take care all xx ‑ 2013-10-05 17:16
  • ~*Nadine*~ @herbstgesicht ‑ @makeDawnrun @lauramariee19 A1 Sleeping in the car, of course. How could I forget… I mainly take the back seat now. #nchat #embarrassing ‑ 2013-10-05 17:16
  • Mike Hunt @TheRealMikeHunt ‑ OK #Nchat gonna pass out now so I can drink a lot later, I’ll catch up with everything then. ‑ 2013-10-05 17:16
  • Laura Bowers @lauramariee19 ‑ @makeDawnrun Glad you could make it! #nchat ‑ 2013-10-05 17:16
  • Shauna Scott @Slsco84 ‑ @makeDawnrun sleep well Dawn #nchat ‑ 2013-10-05 17:16
  • Dominick Evans @dominickevans ‑ @ItsJustMeMia @TheRealMikeHunt I didn’t know you had narcolepsy, Mia? #nchat Im slow. I missed it on your profile lol ‑ 2013-10-05 17:17
  • jenny wakefield @jenniewakefield ‑ @dominickevans add me on facebook i will add u to some groups #nchat ‑ 2013-10-05 17:17
  • Laura Bowers @lauramariee19 ‑ @herbstgesicht @makeDawnrun Argh, the stupid uncontrolable bobbing of a sleepy head… Yes, completely embarrasing. #nchat ‑ 2013-10-05 17:18
  • Shauna Scott @Slsco84 ‑ Well I’ve been awake for 3 hours. Nap time i think! Bye all #nchat ‑ 2013-10-05 17:20
  • ~*Nadine*~ @herbstgesicht ‑ #nchat Thanks for everyone’s input. Good night from my side of the world. ‑ 2013-10-05 17:22
  • Dominick Evans @dominickevans ‑ @jenniewakefield sadly, I should be better. I sometimes yell at her :( #nchat. I try to be though ‑ 2013-10-05 17:23
  • Shanna @nelapurrz ‑ #nchat is everyone gone already? ‑ 2013-10-05 17:24
  • jenny wakefield @jenniewakefield ‑ @dominickevans being a loved one of a sufferer of N can be straining too.. ur not alone. In our groups we have other loved ones #nchat ‑ 2013-10-05 17:25
  • ~*Nadine*~ @herbstgesicht ‑ @mitdoc Interesting. My mom caught a German report, narcolepsy related. They said they were investigating further in that matter. … #nchat ‑ 2013-10-05 17:30
  • Mairéad Lawless @MaireadLawless ‑ @nelapurrz There you are!!! It was 5-6EST. If you search under #nchat you can follow the conversation! ‑ 2013-10-05 17:32
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