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January 5th, 2013 #NChat

01/06/13

  08:28:00 am, by The Dreamer   , 9134 words  
Categories: mSpew

January 5th, 2013 #NChat

  • kathylovesmusic Who's going to the 2013 conference? #Nchat -5:45 PM Jan 5th, 2013
  • MaireadLawless @kathylovesmusic Probably worth talking to someone diagnosed for a long time. Are you in any Facebook groups? Are you medicated? #nchat -5:47 PM Jan 5th, 2013
  • stinacristina Got some really great insight through #nchat! #Twitter #narcolepsy -5:48 PM Jan 5th, 2013
  • kathylovesmusic @MaireadLawless I haven't joined a group, do you recommend one? Each medication I've tried has failed me (xyrem, nuvigil, Ritalin) #Nchat -5:54 PM Jan 5th, 2013
  • jenniewakefield @MiaRaven @lawrencechen #nchat my cataplexy usually occurs when I laugh -6:07 PM Jan 5th, 2013
  • MaireadLawless @kathylovesmusic a lot of the Groups are closed N.R.G Narcolepsy Support Group is good. If you befriend me I can add you to some. #nchat -6:08 PM Jan 5th, 2013
  • MiaRaven @jenniewakefield Mine is (mostly) triggered by getting really upset, angry, and other type of huge emotions. @lawrencechen #nchat -6:12 PM Jan 5th, 2013
  • jenniewakefield @mumfrommold my son is only 8 months old, an av only just thought about how I am gona have to explain it to him as he grows up #Nchat -6:13 PM Jan 5th, 2013
  • TheRealMikeHunt @convergecollide @mumfrommold @stridesagainstN @catthoma We'll get better about it. #Nchat -6:14 PM Jan 5th, 2013
  • jenniewakefield @mumfrommold u have an alert tag? I need one of those #Nchat -6:15 PM Jan 5th, 2013
  • TheRealMikeHunt @jenniewakefield @MaireadLawless Hopefully that will change soon. #Nchat -6:17 PM Jan 5th, 2013
  • MaireadLawless @jenniewakefield @therealmikehunt Are you in Facebook Jennie? There are UK groups. Befriend me and I will add you if you like. #nchat -6:17 PM Jan 5th, 2013
  • mumfrommold @MaireadLawless uk n groups? #nchat -6:20 PM Jan 5th, 2013
  • jenniewakefield @MaireadLawless I've sent you a friend rewuest on facebook #Nchat -6:36 PM Jan 5th, 2013
  • catthoma RT @stridesagainstN: If there is a question or topic you'd like to address, please DM me, @TheRealMikeHunt or @catthoma. #Nchat -9:44 PM Jan 5th, 2013
  • catthoma RT @stridesagainstN: @TheRealMikeHunt Well, I guess you and @catthoma make such an awesome site so no one has to go anywhere else. :) #Nchat -9:44 PM Jan 5th, 2013
  • catthoma @stridesagainstN @TheRealMikeHunt you know it! I'm excited to get going on this project! #nchat -9:45 PM Jan 5th, 2013
  • catthoma Sorry fellow #narcolepsy tweeple... I had to deal with family issues today so I missed the #nchat but I'm excited to go read through it! -9:46 PM Jan 5th, 2013
  • catthoma So much family BULL SHIT today- not just drama. I've been fighting back tears all day AND I missed #nchat ugh #FML -9:50 PM Jan 5th, 2013
  • mama_beers @meggbphillips missed #nchat mom of 19 yo-dx 6 months ago narcolepsy w/cataplexy! Consistent sleep pattern, helps? He sleeps til last min -10:01 PM Jan 5th, 2013
  • mama_beers I missed #nchat from sleeping & I'm not even the sleepy one! Mom of 19 yr old-narcolepsy w/cataplexy dx 6 months ago! #damn when's the next? -10:04 PM Jan 5th, 2013
  • catthoma @mavericksmeow @mitdoc I was told by my new doc he won't prescribe it because I have kids. Makes me mad cause it works. #nchat #xyrem -10:06 PM Jan 5th, 2013
  • catthoma @mitdoc @mavericksmeow saw your other post- I have REM stage behavior disorder too- to not hit REM would be ideal 4 me #nchat -10:15 PM Jan 5th, 2013
  • lauramariee19 I'm going to try! RT @kathylovesmusic: Who's going to the 2013 conference? #Nchat -10:23 PM Jan 5th, 2013
  • catthoma @TheRealMikeHunt move to Colorado! We can have website meetings in person over a beer! #nchat -11:06 PM Jan 5th, 2013
  • catthoma RT @TheRealMikeHunt: We had 5 new people join us in our #Nchat discussion today. That is so freaking awesome! -11:22 PM Jan 5th, 2013
  • catthoma @mumfrommold @kathylovesmusic 2/1 5pm EST. not sure what time that is for you though... #nchat -11:32 PM Jan 5th, 2013
  • catthoma @mama_beers 2/1 5pm EST #nchat hopefully you can make it!!! -11:34 PM Jan 5th, 2013
  • catthoma Sad I missed #nchat today. :-( Just read the thread and it looked awesome @TheRealMikeHunt and @stridesagainstN!!! Going international! :-) -11:37 PM Jan 5th, 2013
  • NarcolepsyNews #Nchat was a huge success ! Next #Nchat is first Sat of the month at 5 eastern US time 23 in cont. Europe Transcript: #nchat -11:56 PM Jan 5th, 2013
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